Huntington's/Brain Disease

This article is based on some of the sessions that were given by Phil Hardt at the National Huntington's Disease Society of America Conference held this past June in Orlando, Florida.

Phil was speaking on men dealing with HD. I think you will find as many others have that his story is ...

This is a story of one mans journey with being at risk and going through the testing process. Ray doesn't hold anything back. He received his results just before I was to get my own. We shared many similar emotions. Ray is a wonderful guy and a forever friend.

This story was written by a dear woman whom I met via the internet and in person at the National HDSA Convention in Arlington back in June of 1999. Her story is a mother's story.
It is compelling and it is heart tugging.

"PLEASE, PLEASE PEOPLE don't ever take the route I did.
(One man's journey with testing positive. By the way he is a friend and a truly wonderful fellow.)

This is a place for individuals and physicians to come and explore the patient doctor relationship. It is a place to write to your doctor (without being known or using names) and share what you have found of great help from him or her or what you feel you could use ...

A honest and personal look at what really happened when I tested negative. Maybe, just maybe it will help someone else.

This is part II in the article on Juvenille Huntington's Disease submitted by Jean Miller who is an incredible advocate for educating the general public and HD community on Huntington's Disease (and specifically Juvenille Huntington's Disease which took the life of her beautiful daughter Kelly in 1998). The information she shares ...

This two part article was submitted by Jean Miller who lost her beautiful daughter Kelly to Huntington's Disease 1998. She takes this information from the book "Living with Juvenille Huntington's Disease edited by Wendy Elliot. Jean and other families who have lost or have a loved one who have JHD are ...

This post contains a letter to my sister who is at risk for Huntington's disease. I recently had the chance to visit both her and my mother in California. This letter was born out of a conversation that took place during that time. I was writing to her but in many ...

Absolutely heart stirring story of Marc as told to and by their local newspaper. I am in the process of getting the name for you.
.....This story chronicles Marc's journey with HD.