Special Needs Issues
- Michelle_F
- thedeuce123
- JmHarp
- Keenan
- creilly
- XiaMoon
- Keenan
- ShiloRob
- marikajarvie
- kroozinkez
This archived discussion is "read only".
For the corresponding "live" discussions, post in the active topic forum here.
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» Michelle_F - Blue diapers!
My daughter's diapers have been turning blue inside for about 2 months now. She has had several UAs done, there is no infection. I have used 3 brands of diapers and cloth, they all turn blue. Does anyone have any ideas? Please email me directly if you do. Thanks!!!-- posted by Michelle_F
» thedeuce123 - Severe Financial Problems
My wife and I have been racking our brains, trying to figure out how we're going to pay a huge repair bill on our 1995 Ply Neon. So far we have been unsuccessful in finding help in this area. Unfortunately my credit isn't the best, and she has no credit to her name just yet. Any information on this type of assistance would be helpful. The reason there is such a press for time in our situation is because she is 5 mo. pregnant and we're not going to be able to handle it so easily once the baby comes... Any information would be appreciated.Thank you...
-- posted by thedeuce123
» JmHarp - Rights for student with special needs
I would like to know where Icould find what rights students with ADD and Down syndrome have in a normal classroom....Such as teacher's aid,special care etc..Talking with my schoolboard is like talking to a politician....Nothing but the runaround,no direct answer...Please someone help me....I am from Ontario so anything pertaining to my province only...thank you so much-- posted by JmHarp
» Keenan - Re rights
Please go to http://www.schoolnet.ca/sne/e/lists.html and post your question to the TeachTalk list. You are sure to get a comprehensive answer.-- posted by Keenan
» creilly - NO ANSWERS
My name is Charlie Reilly and I have a 14 year old son with "Special needs" we have been searching since Kyle was about 3 years old for a syndrome for him always being told by his doctors they don't know what syndrome he has,just this past month they tested him for "Smith-Megenis Syndrome" I did research on this syndrome and was convinced this was what my son had, but was told the test was negative. This is becoming very discouging for me,because when you search for information it goes by syndrome,I want to talk to other parents of special needs children but how do I find parents with kids like Kyle to share experiences.Doctors don't have the answer,and either do I,I want whats best for my son.-- posted by creilly
» XiaMoon - Help with prosthetic contact?
I am posting this with the hope that someone out there knows where I can get help paying for a prosthetic contact that I am in serious need of. I'm embarrassed asking for help in this matter but it seems I've exhausted every option I can think of. I have had the degenerative eye disease, Keratakonis, in my right eye for 5 years. About a year and a half ago I was told that I would need a cornea transplant within the year. As I did not have the funds for this, I applied for SSI for assistance. I received the SSI for another condition but not for my eyes (my left eye now has the disease as well) because their eye doctor said that a prosthetic contact would prolong my vision and remove the need for a transplant for some while. This is very good news, however the medical benefits I have do not include any form of eye care. I have found many programs to help me if I'd already lost my sight completely, or programs that would help me with the transplant, but not the special contact. A social worker has been helping me in my search to no avail. Our debt load is too big, and there isn't enough equity in our home to obtain a loan. The prosthetic contact will cost between $1200 and $2000 per eye. Right now my concern is my right eye, which can no longer focus. Any suggestions or ideas would be very much appreciated, and I thank you in advance for taking the time to read all this.mailto:tribe01@email.msn.com
-- posted by XiaMoon
» ShiloRob - Re: Help with prosthetic contact?
In response to message posted by XiaMoon:What state do you live in? You may want to check into traveling to Portland, Oregon where the Kasey Eye Institute is located. I belive they have programs to help people in financial need due to their being part of Oregon Health Science University.
My name is Shilo Robinson and I am from Oregon and have kertakonis in both eyes. I was referred to OHSU's Kasey Eye Institute by my Health Care provider at Kaiser Permanente. My right cornea is so bad that a prosthetic contact won't even fit due to the cornea's topography. I do wear one in the left eye. It helpsme a great deal improvement in sight was almost immeadiate but took some time to get used to. I am 27 years old with a long list of medical problems that started at birth. I understand and sympthize with what you are going through it is a health problem which causes much pain and makes you feel very stressed and depressed at times. This disease causes me to go crazy at times because of the problems with your dependence on others who may or may not understand what you are going through. It is very difficult to see at night or in dark situations and does not allow me to drive.
It is a sad state of a nation that does not help those in financial need of good quality medical care.
-- posted by ShiloRob
» marikajarvie - Re: NO ANSWERS
hi my name is marika and my daughter was born with smith magenis syndrome. she is now 1 year and 7 months and the only signs she shows is slowness. I am writing because I don't want other people out there to think they are the only ones.I've been searching for over a year now for more and more info but it's all the same. If anyone out there has info please share. I am willing to talk to others about this. My e-mail address is lilkinks2002@yahoo.com-- posted by marikajarvie
» kroozinkez - NO ANSWERS
In response to NO ANSWERS posted by creilly:FAO CREILLY
I realize I am sending this email 6 years after you posted your "NO ANSWERS" letter but I have only just discovered this site and what I read had my full attention from start to finish and I am eager to find out more...if you don't mind.
I am presuming after 6 years you will have the answers you were so desperately searching for and I'd like to know if your son has yet been diagnosed with smith megenis syndrome (SMS)?
The reason for my reply is I myself have a son called Kyle, he is 9 years old and was diagnosed with SMS (smith megenis syndrome) at birth. I would love to hear from you in regards to your son and compare notes, so to speak and maybe offer each other a little bit of advise and help in dealing with day to day life as i'm sure you are aware each day is different and sometimes very hard to cope with as a parent.
I wish you and your son all the best and look forward to hearing from you soon
-- posted by kroozinkez
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