Kaitlyn Joan Dilly and Hemimegalencephaly

» csrk - Hemimegalencephaly

Hi this is Melissa ,Kaitlyn's Mom if you have any questions,Please ask I would be happy to answer them.

-- posted by csrk

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» cutechic - Thank you for sharing your story

Just read the article you have posted regarding Hemimegalencephaly. I have a nephew who turns 9 this week-end, who has this rare disease. It has been difficult finding any resources on the internet to learn more about this condition. Should you have the time and knowledge, would most appreciate any links you could share with me where I could go to get more info. Below is my personal email address where you can do so. Thank you.

ltl_debbie@hotmail.com

-- posted by cutechic

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