Symptoms and ANA count
- aTazManiac
- scottishgirl
- keithz27
- zula
- myandrew1997
- luvbullies
- scoops244
- scottishgirl
- iligyrl
- Mary76
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» aTazManiac - Re: Re: Help :(
Thanks everyone for all the advice. I have spoke to my regular MD who is more helpful then any other doctor I have seen. He did retest my ANA and called me tonight with the results and a positive dx of Lupus my ANA came back at 2.47 he said that is very high (personally I have no idea)and it should be, accordingly to my lab, less then 1.80. Now he is sending me to a rhuematologist, better late then never i guess. I really feel like doctors are almost afraid to give people a diagnosis of any kind a cold. One other thing can anyone tell me if my eyes being very dry and burning might have anything to do with the Lupus. Thanks again-- posted by aTazManiac
» scottishgirl - Re: Re: Re: Help :(
In response to message posted by aTazManiac:Hi again, Taz.
I'm so sorry about your diagnosis! I mean, on the one hand, I'm glad that they know what it is, and are going to get you the right treatments to get you some relief, but I was really hoping that it wouldn't be lupus. [Big hug]
A good rheumie is a lifesaver (literally!) and is your best partner in fighting the wolf. Be sure to tell him/her about your dry eyes -- You could also have Sjogren's syndrome, which is categorized by dry eyes, mouth and mucous membranes. In a nutshell, everything that should be moist, isn't. We had a discussion about it a while back here.
It's a connective tissue disorder (like lupus) and can be helped by many of the same meds as lupus, along with artificial tears, K-Y jelly, and other topical lubricants. Your rheumie should know how to test you for it specifically, and how to get you some relief. Many of us lupies have it as part of the whole package, along with the other specific symptoms like arthritis and Raynaud's syndrome. (Poor circulation to the hands and feet.)
Again, I hope that the rheumie offers you loads of help and hope, and you are more than welcome here to unload, share, ask for similar stories, or just kick back with a cuppa. :-)
Take Care of You!
-- posted by scottishgirl
» keithz27 - help for lupus
Hi all-First let me say that this is not a random post, a sick joke, junk email, or any attempt to solicit info. (I dislike junk email very much)
My girlfriend owns an acupuncture in Salt Lake city and has helped Lupus patients with non-invasive bioenergetic medicine.
We have an at-home treatment kit Denise has developed that we send out in the mail that may be able to help Lupus sufferers to curtail their symptoms (depending on the individual condition) and we want to help as many people as we can.
Basically it works like this : Denise talks to you on the phone for 10 - 15 minutes and gets a brief history of symptoms and such. She is a medical intuitive with years of experience and with your permission tunes in to your energy field, determines if this protocol can help and then goes from there.
You can email me at keithz27@hotmail.com for more info or visit our website www.inharmonyutah.com for the toll-free 800 phone number and more info from Denise.
Best of good health to you all!
Keith Z
Salt Lake City
-- posted by keithz27
» zula - Re: Re: Re: Re: Help :(
In response to message posted by scottishgirl:Hi-- Karen glad you are back, we missed you. I have been off and on, as usual with lupus. Now I have a new problem and they don't think the lupus is causing it.I have a knot on my face they think is lymphoma. they will do surgery on august 9th to determine what it is. Everyone say a prayer for me. My ANA is positive so guess my remission is over and as usual all the sympthoms, don't think these go away postive or not. But can't deal with the feeling tired all the time as I like to go. so this question/ is for areopurple, what is the new medicine. see you after aug 9th. zula
-- posted by zula
» myandrew1997 - good doctor.
My name is Mariam and I was diagnosed with Lupus 4 years ago just after the birth of my son. I haven't had a flare for about 3 years now. I think a lot of it has to do with my doctor. He is an associate clinical professor at a major university hospital and he heads the lupus clinic in it. He does a lot of research on Lupus. If any one lives in the New York City area and is not satisfied with her/his rheumatologist, I would be happy to give out his name. He has 2 offices in New Jersey and works about 5 days a week total in both of them. He even has hours on Saturday. Email me if you would like his name and number.I hope everyone of you feel better like I am.
love,
Mariam
-- posted by myandrew1997
» luvbullies - Re: good doctor.
I would love to know his name. Could you email me at mocejo@cfa.com? Thanks so much!!-- posted by luvbullies
» scottishgirl - Good Doctors
In response to message posted by scoops244:Not for nothing, but the American College of Rheumatology has a "find-a-doctor-in-your-area" feature that might be helpful for anyone looking for a doctor.
Best of luck, and Take Care of You!
-- posted by scottishgirl
» iligyrl - Re: Re: Re: Help :(
In response to Re: Re: Help
posted by aTazManiac:It sounds like you could have Sjogren's disease which would result in a positive ANA result and it causes really dry eyes and dry mouth. This disease causes the salvary glands to dry up and tear glands as well....just a guess to what your symptoms might mean..hope this helps
I was wondering if you could help me with a question? My ANA test came back abnormal at 2.2(H) I have no idea what that means? Its kinda close to your number but i dont know how to interpret that? Any help would be great
-- posted by iligyrl
» Mary76 - Re: Help :(
In response to Re: Help posted by scottishgirl:I'm so relieved to hear your info re: ANA negative Lupus. I was diagnosed with Lupus 15 years ago with almost all of the 11 symptoms (including pericarditis and then cerebritis) and a weak positive ANA - or some called it a bordreline result. I am currently suffering greatly with many of the "regular" lupus symptoms (I'll spare you) and can't get ANYONE rheumie or otherwise to treat me in any way because my ANA is negative. Keeping in mind that during my cerebritis episode (1998 thru 2003), I had 1,000 mg of steriods a day for 7 days in the hospital, 3 years of steroids and immunsuppresant (Cellcept) -- all of which -- I believe could have suppressed the blood tests for quite some time. So here I am unbelievably sick, close to losing my job because the fatiuge is so severe I can't make it thru 40 hrs...and no med treatment because of one lousy blood test. Can you - or anyone else, give me any "reference for data re: ANA neg lupus-- I so desperatly need some type of medical intervention and hope that if I can show some type of documentation I may be able to get someone to belief that I really am in a flare. relief. THANKS!
-- posted by Mary76
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