Kidney Dysfunction in Lupus: More Doctors

» lifewiththetwins - More Doctors

The saga continues. Previously I told you that my MRI showed that I had MS. Well, apparently it did not. My family doctor told my husband a few weeks ago that MS showed in the MRI that the neurologist had ordered. He said that "it is MS but it isn't" and told my husband that the neurologist would probably put me on preventative meds. When I had seen the neurologist he had told me that if MS appeared in the MRI it would be considered MS. However when I went to see him for the follow up he told me that nothing showed up on the MRI and that he doesn't know why my family doctor told me it did. He also said that he retested me for lupus and that all of those tests came back negative as well. So not only did I have the carpet pulled out from under me but I am back to square one. I was so devastated that I felt like I could not go on living for the last two days. Fortunately family and friends have been there for me and I am starting to feel like myself again. I really thought this was it. I thought I would start getting some kind of treatment and my life could start moving again. I thought at least I would be able to slow the progression of this illness down and learn what I needed to cope.
I had even started to question my sanity over the last two days. I began thinking maybe my family doctor's believe that I am just bored was true. However, I keep waking up with the same symptoms. If it were in my head they should disappear. Shouldn't they?

I am going to see my old psychiatrist this week to ask him how possible it is for this to all be related to depression. I understand about chemical imbalances and clinical depression but it seems so unlikely to me that all of these problems can be caused by depression. I am depressed now but I think the illness came first not the depression.

The neurologist said that he would send me to St. Mike's for further MS testing but I declined for now. He also offered to prescribe medication to try to relieve the symptoms but I told him I have been down that road for the last 20 years and it truly doesn't seem helpful. I think treating the symptoms has been what has gotten me in this dilemma in the first place. I trust his reading of the MRI over my family doctor's because my family doctor has shown consistently poor judgement in the past.
Anyway, I have an appointment with a new family doctor in March and I can only hope he will be more helpful.
Bye for now
Lori

-- posted by lifewiththetwins