I will never give my organs, they took my daughters

» RadioMB - They took my daughters and did not EVEN SAY THANKS

My 15 year old daughter died Jan 9 2002, all the doctors, nurses, etc said donate her organs. I being in shock just said yes to help someone else.
It has been nothing but a nightmare since. No one even sent a note that said they got them. Oklahoma farms out their organs to other companys so they have NO idea where they go. After 5 months of trying to find out my wife finally got a name of one of the doctors that took my daughters heart vavles. He said they could not use them because she had hepatitis B. This floored us, my daughter had multiple health problems that started from here DTP shot at 4 months of age. One thing she required was IGG. After we got this information we called the Immune Deficiency Foundation. Their Medical Affairs Director, also an MD, said it might be a false positive from her IGG treatments, that we need to get the type of test that was done to screen the organs. We called doctor Ranne in Tulsa that took her heart. My wife has since tried to contact him many times but has gotten no where. My wife and I have had to take hepatitis tests (which we both were negative). The worst thing in the world is to lose a daughter then to have everyone in the world give you a run around after you have given them the right to take her body parts. Everyone is great when they want your body parts, but can't even give you a return phone call to get a little information about why they could not be used. I WAS marked as an orgin dontor on my drivers, but NO MORE. I will NEVER give any of my body to an organization that does not care enough to return A PHONE call. And as for doctor RANNE, you can see why he is doing this, it is sure not to help the poor people that need the organs.

Mike Bald Tulsa, OK

-- posted by RadioMB

Permalink Print Discussion Join the latest discussions

» shoogjones - Understandably upset, but...

I understand the loss of a child is great and one experience no parent should have to endure. The selflessness these parents showed by letting go of their daughter's physical being was incredible and a choice that must have been guided by grace. However, it seems to me, as an unrelated party, that the door to that room in the heart's home should have closed the moment their child took a final breath. Her soul and memory are what are important after death. Were the parents expecting a return on their merciful act? Donation doesn't ask for thanks. So many men, women, and children live through the kindness of organ donation. Those that lost a loved one must move on in life and pray that their kindness served a purpose. Please don't discourage others from making their lives available for others. Mourn your daughter, pray for others in the world with the same pain, and hug eachother. Let the doctors do what they can without being held responsible for things that are out of their control. What could doctors, humans themselves, possibly tell the parents at this point that could change the sorrow of a child taken too soon?

-- posted by shoogjones

Permalink Print Discussion Join the latest discussions

» StCatherine - Re: They took my daughters and did not EVEN SAY THANKS

In response to message posted by RadioMB:

Someone should have told you that is a common policy for donor families never to meet recipients. This policy is to prevent the donor family from becoming inappropriately attached to the recipient. Some donor families might want to keep up with a receiving child - thinking of that child's achievements (like a graduation) as a continuance of their own child's life. Some recipient children and their parents would be uncomfortable with this.

I'm sorry that your experience was so painful. Your gift was great and I'm sure appreciated.

-- posted by StCatherine

Permalink Print Discussion Join the latest discussions