Fibrofog

Top 24. Jul 3, 2000 8:44 AM

» Dan_Ellsworth - Not just a pretty face?

Carol, your husband loves you for your mind? You're not just another pretty face? That's great!

I don't think Judy considers me just another pretty face either. And yes, I've had the experience of keeping the reasoning ability but blanking out on some well-known fact. Often it's a matter of finding a word (one I've probably used easily thousands of times in my life, but can't think of now), and even though I tell myself, "It's just aphasia goin' through," it's still annoying. And some day I won't be able to think of "aphasia".

In front of a law class -- that sounds like an awkward situation.

-- posted by Dan_Ellsworth

Top 25. Jul 10, 2000 4:40 PM

» CarleyB - Fibro fog

Not long after being diagnosed with FMS, and before I really had begun any effective treatment plan, I was in an auto accident that I believe happened due to being in fibro fog. At that time I didn't even know that much about it or anything else regarding FMS for that matter. But I soon came to identify my many symptoms through reading and through comments made by wonderful people like all of you. Anyway, I believe my accident was due to being in fibro fog which for me can cause disequilibrium---in this case I veered the car to the right and hit 3 cars that were parked on the side of the street. Thankfully no one was injured. As time went on other scary things began to happen---many of which you have described. The comment I wish to contribute is that, for the most part, I have been able to hold the terrible fog at bay by taking 200mg of CoEnzymeQ10 daily---100mg in AM, 100MG in PM. This has been working now for over a year. Sometimes it still happens, but very mildly--mostly I am troubled by memory loss--forget that I have already told somebody something, forget that I have already asked a question, and I am one of those people that watch a movie around 5 times before I finally get it. But the scary stuff hasn't occurred in quite awhile. And I can tell the effect the CoQ10 has---if I run out of it and don't take it for several days, I can feel the fog coming back. Has anyone else tried this?

-- posted by CarleyB

Top 26. Jul 13, 2000 4:34 PM

» tobam - "The Fog"

I enjoyed reading the postings on the fog. There was a scary movie by that title some time ago and I sometimes feel that I am a bad actor in a grade "B" remake. I just had the diagnosis of FMS confirmed 6/5/00 and have been fighting the decline for over 8 years. At least it finally explains what has been happening to me. Up until now I have just told people I suffered from CRS (can't remember ****) or I was having a senior moment. I am also extremely glad that this site has spell checker because, although at one time I was a 60 wpm typist and had excellent spelling, I look back and see that my fingers have taken a trip all their own (makes for interesting reading). See ya'll later; Ed

-- posted by tobam

Top 27. Aug 21, 2000 7:12 AM

» TriciaL - The fog hit for the first time today

Ok I had the first fogging episode thsi morning. I came home form taking the kids to school and my husband asked me to make him a mocha. Well I put the coffee in the dishwahser and tried to start it when he noticed. Oh thats not all there I put his chocolate in the cupboard with the cups and the cups in the fridgerator. I went to ask for help and forgot what I wanted. This is a scary feeling. If these are fleeting moments for us Lord bless the alzheimers patients.

-- posted by TriciaL

Top 28. Dec 28, 2000 11:16 PM

» jlkd - Fibrofog

It doesn't seem like you were suffering from "fog" at the time you wrote this! I knew I'd been suffering this from time to time and you did a great job of sharing examples that make a lot of sense to me now. Lack of tolerance for noise and loud TV/stereo are one of the things I've noticed. I've also experienced job & benefit loss because of inability to focus as needed to produce the expected sales volume and results. Neither employer offered part-time career positions, so I had no choice but to resign. When my symptoms were slight, I was a super sales person and it was hard for others to understand my flare ups and lack of results...as you stated, "brain fog" in its various forms can last for months. I really felt dumb. Though as time has progressed (2 years post diagnosis) I continue to learn to try and be a little more easy on myself and realize that I'm not alone in all of this....Thanks for your articles!!

-- posted by jlkd

Top 29. Dec 28, 2000 11:55 PM

» Roostergrl - Re: Fibrofog

In response to message posted by jlkd:

I totally relate to job problem. I didn't know what was wrong with me at work. It was like I had started to regress and forget everthing I knew
in the past. Once I spaced so bad I almost caused a car accident! It was really scary. But
now its even worse. Making a sentence makes me feel like an idiot so I have become much more quiet when with friends, which they all tease now I will finally know what 'they' have been talking about all these years.:0}
Barb

-- posted by Roostergrl

Top 30. Dec 29, 2000 2:55 PM

» Carol Wallace - Re: Fibrofog

In response to message posted by bar_be:
Actually, I was relieved to know about the fog, because for the past few years I had been blaming myself for all the little details that I let slip. I thought it was a lack of professionalism, that maybe I wasn't concentrating enough, that I didn't care. . . you know the drill. And of course most of our administrators were more than happy to reinforce the idea that it was just me and my bad attitide that led to my performance slipping.

I was happy when my dean received the news about fibro almost with relief. Years ago we used to be friendly, go to auctions together, etc. I think he remembered that and was very disturbed when as dean he kept getting complaints about me - he remembered someone different. And I was surprised but extremely relieved when he proved supportive.

But I was even more relieved toi find that there was a physical cause for my failures.

-- posted by Carol Wallace

Top 31. Aug 15, 2002 9:47 AM

» Georgie46 - Re: Thank you, Linda. I can relate to so much of your message.

In response to message posted by merian:

Thank you for you message. Sometimes I need to be reminded of who is in control.

So, I'm not loosing my mind, I'm just experiencing my first MAfibofogofog. I'm so glad I found all of you. I have had momentary problems before. I laughed and told everyone must be old age. But this time it has been going on for weeks. I keep staring at the piles of work on my desk wondering how I have kept this job for 5 years since I haven't a clue what I am doing. I tried to give directions to the home I have lived in for oveyrs yrs. I couldn't remember a single street name. The harder I try the more difficult it gets. I relate to the "going from one room to another" problem. Today was so bad that I couldn't remember why I was standing in front of the fax machine with papers in my hands. Now, just how do you explain this to the people you work and live with?

-- posted by Georgie46

Top 32. Jan 27, 2003 5:16 PM

» debbershere - fibro fog

I lived in fibro fog for years..one day i suffered a sever migraine..my doctor gave me meclezine for it and surprising enough it got rid of my fog...i am now in college and can somewhat remember things..not everything but i am able to be in college ...i am toughing it out and found out the longer i took the meclezine the better i got..you might want to try it..

-- posted by debbershere