The Fibromyalgia Friends

Top 42. Feb 18, 2003 1:52 AM

» tamara_peters - Re: Loni's site referrals

In response to message posted by Bely:

Bely, you will be able to directly access those letters from my topic page. They're listed under 'For the Newly Diagnosed' in the bulletin's section. Thanks to Loni's reminder I decided to permanently add them there as I'm prone to forget. ;-)

Carol, that's what I understood as well. I was looking for a particular post that linked to, or stated, the exact regimen though. I can't remember if it was here, Dars, or Karyn's site that it was originally posted. Does anyone else remember that? I'm glad those tumors aren't anything to worry about. smile

Tery, starting a support group in your community sounds like a great idea. I'm sure Loni could give you lots of help. Also, Debbi Craig is planning a course on that very subject, but I'm not sure when that will be available.

Loni, did I send you an e-mail about Debbi wanting to ask you some questions about online support groups versus offline ones? I think it may have been while you were having so much trouble with your back that she asked me. I can hook you up if you're interested in answering some of her questions ok?

-- posted by tamara_peters

Top 43. Feb 19, 2003 8:12 PM

» Loni - Re: Re: Loni's site referrals

In response to message posted by tamara_peters:

Hi Tamara: Finally got on the computer today. Still not able to be here every day.

Actually, I didn't start a support group; what happened was that the 3 ladies who ran it had to quit and asked me if I would take it. That's how I got into it. There is excellent info at ImmuneSupport.com on this very subject. Look at the table of contents on the left side of the page. If I remember correctly, it's titled, "How to Start a Support Group".

In answer to your question about the e-mail about Debbie's questions, Tamara, no, I didn't get that in my e-mail. Just went through the e-mail today, and there wasn't much there at all, and also backtracked about 6 weeks, so it wasn't there that I know of.

That's one thing I miss doing right now, is working for the support group and going to the meeting. My co-facilitator is down with the flu that has invaded this town, and she couldn't do the meeting this time around, either. One of the former facilitators did it this time, and we have a guy that can do it, if need be.

Bely, if you went to those sites that I mentioned, you should have been able to access those letters through the pull-down menus at the top of the page. Tamara now has them in the Newly Diagnosed in the bulletins section. ( Thank You so much, Tamara ).

(((( Hugs )))) Loni

-- posted by Loni

Top 44. Feb 21, 2003 3:22 AM

» tamara_peters - Re: Re: Re: Loni's site referrals

In response to message posted by Loni:

Hi Loni, I will e-mail you Debbi's addy if you're interested in answering any of her questions. I think she does have the info about starting a support group. What she was interested in was your comparison between offline and online groups. There sure is a lot of sickness going around now isn't there?

Thank YOU Loni, for reminding me about those letters as that gave me the idea to add the links here. Don't know why I didn't think about doing that sooner. I'll also be adding other info and links to that newly diagnosed section as soon as I can. If anyone has any suggestions for what I should put there please let me know okay?

Hugs,
Tamara smile

-- posted by tamara_peters

Top 45. Feb 21, 2003 9:03 AM

» icequeen298 - The pain of this disease is excruciating.

I knew very little about this disease,Until now visting this web site. I never knew it was this extreme. I knew it caused a lot of pain. I never knew a lot of the symptoms. I have a lot of the symptoms. I hope other people learn about this crippling disease like I did.

-- posted by icequeen298

Top 46. Feb 21, 2003 10:56 AM

» tamara_peters - Re: The pain of this disease is excruciating.

In response to message posted by icequeen298:

Hi icequeen: Welcome to Fibro Friends, and thank you for posting. I'm very glad to hear you've found the information here to be helpful. If you have any questions please don't hesitate to ask. And please feel free to join in the discussions. You'll find this to be a wonderful group of FMers who are happy to help one another any way they can.

Hugs,
Tamara smile

-- posted by tamara_peters

Top 47. Feb 21, 2003 11:02 AM

» Tery - Re: The pain of this disease is excruciating.

In response to message posted by icequeen298:

Hi,

You will find wonderful support here! You've come to the right place smile I am somewhat still new as I started my column at the end of January.
Since then, I have already received so much support, feedback, inspiration, and education on fibromyalgia and CFS.
Tamara is a great support! smile She is so helpful and is always recommending sites, books, and other information.
Welcome!

-- posted by Tery

Top 48. Feb 21, 2003 12:16 PM

» tamara_peters - Re: Re: The pain of this disease is excruciating.

In response to message posted by Tery:

Thanks Tery! smile I've been meaning to tell you that I checked out your home page and thought it was wonderful. I just sent you another e-mail about the HTML as well. I know it took me a while to conquer it so don't give up okay?

Hugs,
Tamara smile

-- posted by tamara_peters

Top 49. Feb 21, 2003 2:56 PM

» Carol Wallace - Re: The pain of this disease is excruciating.

In response to message posted by icequeen298:
Hi Icequeen - and I'm glad you found us. This group has been an absolute godsend to ma, and to many others. It is so good to know that somewhere there is a group of people who understand exactly what we're going through.

If you're new to fibro, you may want to consider taking my Coping with Fibromyalgia course online. I shouldn't really call it "my" course, because many of the people whose names you see here really helped me to put it together. So it reflects the cumulative knoweldge and experience of a lot of people who have been living and coping with fibro for some time now. If you're interested, just click on the link in my signature.

-- posted by Carol Wallace

Top 50. Jun 10, 2006 3:41 PM

» Darkplum - new here

I bumped into this area while I was looking for a fibro discussion area. I've had it for almost 5 years. It helps sometimes to talk to others about a bad day and what helps and doesn't. I haven't had a terrible day *cross fingers* in awhile, which I am so grateful for. But, anyway, I was pretty much looking for an area to complain =) and to discuss. I know a few other people w/ fibro and I like learning about what it's like for them and I like being able to discuss it basicly. I can't really do that a lot because the people I am around don't understand and the others don't care to even try. So anyway, hope everyone else is having a good day..
*peace, luv, n harmony...

-- posted by Darkplum