Fibro Friends' Support Group Cont'.

Top 32. Sep 4, 2004 8:31 PM

» zhann - Re: Ironing

In response to message posted by energynow:

Oh is that what it is? I thought it was a lab experiment. Mine has mold growing on it. LOL

Hi to all. Joyce

-- posted by zhann

Top 33. Sep 4, 2004 10:26 PM

» lmswan20 - Re: Re: This is my first post

In response to message posted by CarolWallace:

Hi Carol,
I never realized that short term memory loss, comes with fibro, nor did I know that loss of balance came with it. I have both of those. I have always blamed the memory loss on a accident that I had when I was a kid, and had about a twenty minuet memory loss. The DR told me a couple of years ago that it was caused from a suppressed memory (if I am saying that right) I have to admit there is allot of "not good" in my young life.
It's got to discourage you not to be able to do what you were trained to do, I know you loved it I
know it gets to me.
It's got to the point that I am embarrassed at work for them to know that I’m not able to do certain things like I used to, or for them to know that I’m in pain, etc.
My boss had a major accident a month ago, when him and his wife set out for a five mile ride there dog ran out in front of him, and caused him to flip. He is ninety percent better now, he had no short term memory for a wile
His wife continued working at there office and then would go to the hospital and work, of course that is where he was at. She even went to meetings for there business. I never herd her complain. She never told me any thing else other than he was fine. When he came home he said one time he was beat, she told him not to talk that way. They are really strong folks, I told her she was one heck of a woman, she told me that you didn't get were they were at by being weak. I kind of took that personally.
I used to be so hyper it wasn’t funny, some times I would drive my husband crazy. since I have been on meds. I don't get that way much any more. Your right, when I stop it's hard to start back. Now it's almost impossible to keep going. It's very depressing for me, I hate it, and some times it's embarrassing for me to admit any of it. Theirs always something, I sometimes feel like a hypochondria.
I have had the lower back pain every since I can remember, When I was twenty two I found out what was wrong, I was told surgery or back brace. I chose neither, I was to young, and had a lot of years left to work. I had already had my children and planed to have no more. I lost my job, got better, fond another job and dealt with the problem as it happened. But over the years, it got worse, I lost the inf. from the Dr. don't remember who the Dr. was, and no Dr. has believed me since. It was found again when I had this last accident. I am going back to the Dr. this month, I had it moved up, my pain meds only last about three or four hours and I need more.
"Gosh" I don't see how you can stand the pain! I guess I am weak!
I will find out about the MRI than, It will be my luck, it will show nothing. and thin again I will have no help. They wont tell us anything over the phone, and because of a full set of records on "each" my husband and my self, that were mailed out to us but never received, and numerous of other reports from them sent open or just taped, we wont let them mail anything to us.
Transportation, and gas keeps us from going into town very often.
I hate you had to go through that. If you don't mind me asking why did you have to have your cervical spine rebuilt?
No dear there not always forthcoming, I’m not trying to discourage you, maybe I shouldn’t even say anything but, my Mom had two or three back surgeries and still was in pain when she died. I know times have changed, but hmmmmmm???????
Your right again, most all the time no matter how bad I feel I start the day with a smile and a uplifting mood, it starts to go sour a few hours in, I still try to stay happy, music really helps. That’s why I want to get into writing. I have a hard time staying focused, but I like it, just not able to stay seated too long, so it
takes longer. "Ya that’s right" new ways of doing old things. I wonder what my boss thought of the new way I clean windows? I was almost ashamed not to be on a ladder in washing them
the old way with mussel grease.
I feel I have no chose but to focus on work, I cant afford not to. Being the only income right now, So-------

I will try to do better, not to complain, and keep my self from going insane.
Thank You for pointing out the good, and having me think positive as I should.
I will concentrate more on the things I can do, and think less of the things that I'm unable to do.
I will look for the bright spots, and look more at my haves, instead of my have not’s.
I have many blessings. That I know, but some times I have to be made, to look deeper to see them though.

I will not cuss God, for things that go wrong, instead I will try to concentrate on a something better, "Oh I don't know, maybe a poem, or a song.
I will learn how to help turn something around, from bad to good, and put them in words that can be understood.
Well, I wont keep you any longer, I'm sure you get the point. I was blessed again today, thanks for you, and this sight for showing me support.

Mary Alice

-- posted by lmswan20

Top 34. Sep 4, 2004 10:34 PM

» lmswan20 - Re: Welcome, Mary Alice

In response to message posted by energynow:

Hello Jean in Tennessee,
Love Tennessee It’s beautiful !!!! we have something else in common.
You sure have been a blessing to me. It also gives me a chance to think about things differently.
It has been coming for a long time for me as well, I just never knew how to accept it.
Maybe I will think about going back to school, My grammar is awful, I don't spell worth a darn.
If I have to lesson my hours at work again, they may not want me any more, and even if they did I don't know how we would make, until I could do something else.
Ha, I wonder what I could make off of a song if I wrote one?
I like to joke around, and I get depressed too. I don't think I will give up on God, he has kept me going every since I can remember. I have faith things will get better, I just have to find the right way to do that. God will help show me the way.
Thanks Jean for being here to.
and every one for caring.
Mary Alice

-- posted by lmswan20

Top 35. Sep 4, 2004 10:38 PM

» lmswan20 - Re: Re: This is my first post

In response to message posted by zhann:

Hi Joyce,
Thanks for welcoming me, I think I just found this site, and after a wile new that everyone would understand, so I vented. I'm really not that bad. "I hope"
It's not just you, I assume It’s everyone that cant get into the other post, It doesn’t work for me either.
I am content were I am at.

-- posted by lmswan20

Top 36. Sep 5, 2004 2:04 AM

» zhann - Re: Re: Re: This is my first post

In response to message posted by lmswan20:

Hi Mary Alice, Glad you are here. Enjoyed the poem. Am up right now watching the storm. Hope you have a good weekend. Joyce

-- posted by zhann

Top 37. Sep 5, 2004 9:18 AM

» lmswan20 - Hello Tery,

In response to message posted by Tery01:

Hello Tery,
Yes I like both, I've got a couple of want to be songs started, but that’s as far as they seem to get. Some times I think it is cool to, other times I think it may be childish. I always have mixed emotions. I worry too much of what others think.
Thanks for the complement, on my writing.
I have to learn to stay focused, and it not take me all day, what I say needs to come to me faster, and of course my typing does to.
Take care to. Talk to you soon.
Mary Alice

everone I forgot to chacge the subject
and Joyce, I left out part of your message, I hope you are feeling better,
take care
Mary Alice

-- posted by lmswan20

Top 38. Sep 5, 2004 9:40 AM

» lmswan20 - Re: Ironing

In response to message posted by energynow:

Oh is that what it is? don't feel bad, I don't iron at all at home. only at work. And that is only because I have to. My vacuum has been sitting in the middle of the living room floor since I had the grand-kids last weekend, or the weekend before, I can't remember.
see you later.
Mary Alice
take care I have got to get some stuff done around the house today.
Mary Alice

-- posted by lmswan20

Top 39. Sep 5, 2004 11:19 AM

» Tery01 - Nobody is weak

In response to message posted by lmswan20:

Hi Mary Alice,

I don't think that you are weak at all. We all handle and deal with pain differently. Some of us, to be honest, have different thresholds for pain and not every fibromite has the same experience with pain.

I know I am a lot different with my symptoms compared to others, but I try to keep thinking positive.

It can be very depressing that is for sure. What makes me down a lot is the roller coaster that I am on...one day I am as light and free as a butterfly and then next I am tired, painful, and frustrated like a bull. I know the ups and downs all too well smile

Of all that I read about chronic illness and pain, I am coming to the conclusion that it is all about Positive thinking. You should check out my Celebrating Life Column; the link is at the end of my signature.

With this pain that I so lovely endure...one thing I have realized is that Life goes on...and like a screaming kid in the back seat of a car while I am driving...I have learned to tune out the pain smile

-- posted by Tery01

Top 40. Sep 5, 2004 3:28 PM

» Carol Wallace - Re: Re: Re: This is my first post

In response to message posted by lmswan20:
Hi Mary Alice!

Yes, iot does get frustrating not to be able to do what I was trained to do - but I've discovered that in that case you simply have to find some alernative activities that you can also enjoy. And to find new ways of doing things that you used to do a harder way.

What is your new way of doing windows? Any hints you can share?

Fibro causes a lack of short term memory that we call fibrofog - it happens because we have such poor quality sleep. It's not the same as amnesia - it is more like forgetting what you were talking about in the middle of s sentence (which happened to me far too often when I was teaching, which can be extremely embarrassing ;-), or forgetting why you got up and walked into the living room, although you were quite sure you had a purpose when you started out. Our garden is really large and that got tiring, so I took to carrying a small tape recorder and would tell it why I was walking across the yard to the gazebo in case I forgot by the time I arrived.

If the stuff your doctor says he sent you keeps getting lost, can't you arrange to pick it up in person? I have my doctor make me copies of reports while I am there in his office and then take them home with me.

I've found that the average time that most pain pills have any effect is about 4 hours - maybe because that's about how long it takes our system to digest anything. There are some that work on a time release principle, and they may last longer, but I don't know the names of any offhand. But I also wear a pain patch that is supposed to be effective for three full days - although it generally is pretty well worn off on the third day.

It may be hard to stay focused when you write, but the big advantage is that you have whatever you've already written in front of you, which is also a sort of reminder of where you were going. That's much easier for me than talking, and I still am able to earn some income with my writing even if I can't give lectures any more. Since being a writer is what I wanted to do from the toime I was about eight, I think that's pretty cool - the fibro forced me to stop teaching so I'd have time at long last to do what I really wanted. (which was my first silver lining - and I've managed to find them for most things ever since. Sometimes It's hard work - but there is usually something of a bright spot in everything.

-- posted by Carol Wallace