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» Helen01236 - I just happened on this board by accident trying to research Imm

I just happened on this board by accident trying to research Immuran, and read some of your posts. I felt the need to share with you the answer I found to years of watching my 11 year old son suffer from severe Crohns. He was diagnosed at age 11, was skeletal and had a fistula the size of a golf ball, 9cm deep. Over the next 4 years, I had to endure watching my beautiful child suffer as no-one ever should. I can never explain to anyone the sorrow I felt in my heart. It was at times unbearable - I wanted to help him, and did not know how, and neither did the doctors! He was all alone at the mercy of this terrible disease. For long periods of time, he would survive with a central line in his chest to nourish him - walking around with his drip pole for months, while all the other kids were playing sports and enjoying life. Anyway, what I want to share is that when he was 16, he was once again in the hospital, discharged, and then 2 weeks later back in the hospital again. I had found out that people over in Europe often treat Crohns patients by feeding them through an NG (nasal gastric) tube. It would put them in remission. I dared to suggest this to my son, and was surprised that he was willing to give it a shot. I gave him a very narrow soft flexible tube and measured it off for him. I told him to practice and see if he could insert it. (It is quite small, like the inside of a pen that holds the ink). The tube is called an "8 inch French."
After some practice, he excitedly called me to his room. He had managed to get the tube down! We hook him up to the pump and started feeding him some Peptaminn 1.5 (a drink especially formulated for gastric impaired people). At the time, he weighed 87 pounds. We began feeding him like that overnight, and in the morning, he would simply remove the tube. He was free to wonder around at his will. His weight shot up to 140lbs, and he started body building. His cheeks were rosy again, and I remember the first time he took that yellow bus to school with the rest of the kids. The first time in 4 years! I stood at the window and cried! That was 2 years ago. He still does his tube feeding at night. During the day, he is able to eat other foods. He has never become ill again, other than a bothersome fistula this past February, that went away after some treatment. He has just started college and earns some extra money as a qualified gym instructer at 24 hr fitness. He is extremely muscular and fit now.
If any of you out there, have had enough of this disease, and are willing to give this method a try, please let me know if you need any more advice. It turned my son around, from being extremely ill, to throwing away all his meds for good. The same method can be used on younger children who are not mature enough to insert a NG tube. I forget the name now, but they put like a feeding port on the belly. It really its worth giving it a shot. The quality of life you achieve if it works, makes it worth the effort.
Take care,
Helen
PS Medical ins. covers EVERYTHING!! They deliver to my home once a month.

-- posted by Helen01236

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» jeff1957 - Re: I just happened on this board by accident trying to research

In response to message posted by Helen01236:

HI
my name is jeff my brother-in-law is 21 he has had crohns for 4yrs.i just married in to the family 6mos. ago i don't know to much about it just what i have read on the internet.we would like to talk to someone that knows more about it.
he is in alot of pain and other things right now.
please e-mail me at cristalnjeff@zoominternet.net
thank you jeff adams

-- posted by jeff1957

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