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What is Crohn's DiseaseRead the article this discussion is about
This archived discussion is "read only". « Previous 1 2 Next » » oldlace - Re: Support is needed Thank you for the wonderful compliments.I was in a dicussion group the other day and once we all started talking we noticed familiar behaviorial traits that we had in common. The main ones being. Anti-Social or Home bodies, and perfectionist. Does any one else feel that people with Crohn's Disease have these traits. Most of us also agreed that these traits did not come from the Crohn's but were there before the disease. I just thought it was an interesting topic. Susan Johnson (oldlace) -- posted by oldlace » jelybeanz - Thank God for Support... I never knew about Crohn's Disease and I haven't actually been diagnosed with it. My doctor has decided that is what I have and we are going through more lovely test this week. I just surfed on to get up to date with what this disease is. I fit all the criteria for it - but time will tell. I did not know this was so common. It would be nice to be able to say why I feel the way I do without my husband or anyone else thinking it is just in my head. Regardless of whether I have it or not, I have become more aware of this and it makes me want to help other who suffer. Thank you for putting out this information!!!!!!!!-- posted by jelybeanz » Connie00 - Chrohn's personality traits.......... When I read Susan's comment about Chrohn's people being home-bodies and perfectionists I almost fell off my chair. It is so true. I had been told when my symptoms first appeared (1972) that it was a stress oriented disease and if I learned to cope better I would feel better! After I got a better Dr. I began to feel better or atleast I didn't feel responsible for my disease. I have always preferred to do projects myself in school, stay home and crochet or quilt, and ofcourse, as my dad taught me - if you can't do it right, don't do it all. The perfectionist runs in my family !Anyway, just wanted to say that your comments really struck home.I am new to the internet and was pleasantly surprised to see that anyone even knew what chrohns was, let alone have a whole page about it. Thank you, I will continue to check in to see whats up...........connie -- posted by Connie00 » jelybeanz - Results are in! As I stated before, my doctor was not sure - but yet almost positive that I had Crohns. You know how they double talk!!! Well, after a colonoscopy, upper gi, small bowel series and an ultrasound on all my little parts inside....it has been decided that I am just stressed out and probably should seek counseling or something and perhaps watch what I eat. Don't get me wrong now, I am not disappointed by not having Crohns. I am disappointed that once again my severeeeeeee pain and all the getting diarrea after eating and the sick feeling...almost like having the flu is once again noted as "mental"!!! I started this venture over six years ago and I stopped seeing doctors when they told me it was all in my head. The pain got so severe this time that I really could have killed anyone who looked at me. I really thought that this time maybe...just maybe someone would give me some kind of information that would explain the things I go through. I know for certain that it is not a fun life! My heart goes out to others who have to experience it. It's lonely in a world when people just think you say your sick just because you want attention or something. I just wish those same people could sit in the restroom with me or even feel what I feel when I am sick. I don't mean to be soooo negative! It's just frustrating after all these years!!!!!-- posted by jelybeanz » Connie00 - Support for Jelybeanz Six years! You have been fighting quite the battle. I was feeling pretty bad around 1972. You know the deal, diarreah, cramps, bloating, more cramps. My Dr. also told me it was stress and suggested I read a book called "How to live with yourself 365 Days per year" Ofcourse I followed Dr. orders but the book did no good. Yes I was stressed, probably from being in the bathroom 25 times a day and trying to care for a 3yr old. Then I got pregnant and everything seemed pretty ok until David was a couple months old. Symptoms came on big time. I still remember putting him in his infant seat, setting him on the floor infront of the toilet and feeding him his bottle while I sat on the toilet for the 100th time that day. Next Dr. said spastic colon and gave me drugs that knocked me out so bad I still don't remember that week and wonder how I made it. Finally found a good Dr. quite by accident when I went to ER one time. Yep, he found chrohns and the road to treatment began. Was not fun but atleast someone took me serious. It may have started out with stress, but once the disease is there, even eliminating the stress doesn't make it magically go away.I can't imagine how frustrated you must be and I hope you find someone to listen and help you out. There should be more to life than bathrooms huh? Feel free to email me if you want. I may not be able to help, but I will listen...Connie in Wisconsin -- posted by Connie00 » cody99 - Crohn's Disease I myself don't have Chron's Disease. My dear niece who is now 18 years old has suffered with this disease for the past 6 years. She has had many of the experiences you all speak about. I have MS and am wheelchair bound. There seem to be alot of similarities among the 2 diseases, ie. the uncertainty of never knowing how your day will be when you wake up in the morning. Good days, bad days are a common similarity. I myself have learned over the past 9 years, to appreciate the moment. Yes, easily said but you must work at it all the time. It is a simple decision, always choose the positive thought over the negative, always. Enjoy what life has to offer, simple pleasures exist all around us, it is up to us to see them. I believe that MS has taught me this. There is always a silver lining to every cloud, always. It is up to us to find it.-- posted by cody99 » wht_rabbit - To my mother I would like to post a public apology to my mother. It only took a moment browsing through this discussion to realize that I have not been the supportive daughter that I should have been. I have seen mom struggling with this disease for years, and keeping her chin up most of the time, without realizing the emotional toll it must be taking on her. I should have been savoring the time she was feeling well enough to enjoy spending time doing the things she enjoys instead of spending so much time complaining about her lack of energy and interest. As I continue to grow and mature and come to understand myself and my struggles I promise to expand that circle of knowledge to include a better understanding of who my mother is and how I can support her. I love you, mom.-- posted by wht_rabbit » Someones_Mom - Message to Wht Rabbit Thank you for such a lovely message. It brought tears to my eyes; I would like to believe my own daughter wrote this letter. As a mother with Crohn's Disease, I can totally understand the frustration family members and loved ones experience. The patients themselves are frustrated and unhappy with the burden they carry; it is natural for the children and loved ones to feel frustration due to our isolation, lack of interest and energy, and the humiliation we often experience. I know my children and grandchildren have suffered from the side effects of my disease. But as our children mature and our loved ones become more knowledgeable about our condition, we become an even more close knit family and learn to understand each other's shortcomings.Thank you, Wht Rabbit, for a beautiful tribute to your mother and all patients who suffer with Crohn's Disease. -- posted by Someones_Mom » lynn_cowgirl - Please Help me Hello. I am 15 years old. I get diarreah everyday and i hate it. It makes it very hard to go to school. I have a doctors appointment i am going to go to soon. What all tests do they run when you go to the doctor for diarreah? If i do have Chron's Disease what is the treatment? I would appreciate it if someone could email me at lynn_cowgirl@hotmail.com as soon as possible with help. Thank you so much.-- posted by lynn_cowgirl » jeffj24 - Re: Please Help me In response to message posted by lynn_cowgirl:I was diagnosed with chrons when i was 15 and am now 18 and i have been completely fine since then. So dont worry. how did the tests go? Theres a good medicine for the diahrea called colestid which tastes really bad but really helps. -- posted by jeffj24 « Previous 1 2 Next » Please follow the guidelines set forth in the Suite101 Posting Etiquette when adding to the discussion. |
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