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MY GRANDSON HAS ASPERGER'S SYNDROME


  1. Dubh_Sidhe
  2. Red
  3. Rosee
  4. Red
  5. Rosee
  6. Red
  7. Rosee
  8. Red
  9. venge
  10. Red

This archived discussion is "read only".


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Top 21.   Jun 11, 2003 4:44 PM

» Dubh_Sidhe - Re: Childhood shots

In response to message posted by biogardener:

Mary, I have never heard of this condition. Your article is excellent and I appreciate what you have told about this syndrome. I do agree with Traute. The innoculations that babies are getting today is absolutely terrifying! It is amazing that their little bodies are generally able to withstand this onslought of various anti-this and anti-that's. I spent agonizing weeks as my 3 grandchildren were subjected to these agents, fearing some dreadful side effects or worse. But some of the bad effects are not evidenced until years later. And now, the Troll under my bed is faced with these new contagions like Mad-Cow, SARS, Monkeypox and heaven knows what else. Well, I must go. (Dubh)

-- posted by Dubh_Sidhe



Top 22.   Jun 11, 2003 5:05 PM

» Red - Re: Re: Childhood shots

In response to message posted by Dubh_Sidhe:

Virginia,

Yes, we have SARS running rampant in Toronto, Mad Cow Disease in Alberta, West Nile Virus right here in our own backyard and Monkeypox has been found in four US States. Kind of scary, isn't it?

The boys have had all their innoculations. Jordan just got the one for 5 years old. He is delighted that he doesn't have to have another one until he is 15. LOL

I saw on CNN, that they are thinking of bringing back the smallpox vaccination. I remember my brother and sister being very sick when they got theirs. I was lucky. It didn't bother me at all. However, I was miffed because I had to go to school while they stayed home.

-- posted by Red



Top 23.   Jun 13, 2003 4:57 PM

» Rosee - My grandson too

Hi Red! My eleven year old grandson as this syndrome too and I think my other grandson from my youngest son may have the signs as well. I feel so helpless with my eleven year old grandson Mitchell. Everything seems so difficult for him..everything that you wrote is Mitchell to a T. He also has ADD so finds it hard to keep friends and blend in with his brother and sister. He takes medication right now and he has gained some weight because of it. So this doesn't help his situation either in school and having friends unfortunately. I am going to try and get a hold of a couple of the books you suggested for him to read. But now that I read more of the signs I am afraid that my three year old grandson is showing the signs as well. He has been doing the lining up of the cars ever since I can remember. But it will not be a shock to me if he does because I feel he has been a little different from birth as well. Thank you for all your information and suggested book reading.

-- posted by Rosee



Top 24.   Jun 13, 2003 6:48 PM

» Red - Re: My grandson too

In response to message posted by Rosee:

Rosee,

If you live in the US, you can order the books from the Suite. I have them on my Canadian Tourism site in my bookstore.

If you believe your grandsons have, or may have Asperger's gently suggest to their parents that they may want to take them to a specialist. The later the diagnosis, the harder it is for the kids. Children can be taught to live with this disease, or rather trained. If I can be of any support to you, be sure to drop me a line. Now that Brandon has been diagnosed, we are learning how to cope and learning how to train him to cope. It is a long road, but we will make it.

-- posted by Red



Top 25.   Jun 13, 2003 8:06 PM

» Rosee - Re: My grandson too

In response to message posted by Red:

Thanks so much Mary..I live in Canada so I will look in your site. Mitchell has been diagnosed for about two years now and the parents are doing their best to work with him. My son gets quite impatient with him though but then my son has his own problems with OCD and depression. Oh the joys eh... The other grandson is my younger son's boy and I will have to be very very careful as how I would approach the subject with them. They are coming for a holiday soon so I will get to see my grandson again and see if he is any better? He doesn't make eye contact with anyone either except for his parents...is this a sign. But the cars thing, the flapping of the arms when he throws a twister is another and routine being broken is a big one too. I am going to try and have Mitchell alone with me for a bit over summer as he does better one on one I find. It will also give the parents and siblings a break from the stress and tension too. Mitchell is quite mean around the younger sister and brother and tends to hurt them quite often. Oh dear..I seem to be going on and on here. Thanks so much for listening Mary. Now I will and see about getting a book for Mitchell and maybe that will give him some insight to what is happening to him. Hugs, Marilynn smile

-- posted by Rosee



Top 26.   Jun 13, 2003 8:47 PM

» Red - Re: Re: My grandson too

In response to message posted by Rosee:

Marilynn,

Your younger grandson does sound as if he might have Asperger's Syndrome, and yes, we have to be very careful about how we approach their parents. Offensive can be taken when we only mean to be helpful.

The main symptoms of Asperger's is not making eye contact, lining things up in precision order, having melt downs, lack of empathy, flapping with the hands and not being able to handle change that other children would handle fairly well. Brandon can read some facial expressions and we are training him to look for them. He knows when his teacher is "fed-up" as he calls it. He knows when he is pushing buttons. However, he has a very mild case. Some children cannot read facial expressions at all.

I believe that you said Mitchell is 11. Lisa and the Lacemaker would be a terrific book for him as would Asperger's the Universe and Everything. It was written by a 10 year old who has Asperger's. I have read it and his insights of the Syndrome are really awesome. It is a great book.

Brandon is quite mean to his brother at times. He just doesn't realize what he is doing. Asperger's kids perceive things much differently than we do, so they don't know how others are feeling. Asperger's is a chemical imbalance of the brain. Putting children with Asperger's on a Gluten-free diet sometimes helps. My daughter just took Brandon to a holistic healer and he told her that Cod Liver Oil has an essential chemical in it that helps children with Asperger's. They now have Cod Liver Oil that doesn't have the fishy taste. Brandon has orange flavor. This can't hurt and might help your grandson. Remember, I am not a doctor and can only tell you what works with Brandon.

Asperger's children must have everything told to them in very factual terms. For instance, instead of telling them to set the table, tell them to put the knives, forks, plates and spoons on the table. The need specific instruction so they don't become confused. They also have a hard time making friends because they don't take others feelings into account.

Another thing that worked for Brandon. I told him that when I put my hand on his shoulder, that it means he's to stop. So, when he has a melt down, that is what I do. I will say to him, "What does this mean?" He will say, "It means to stop," and he will. If he still continues after that, which happens when he is extremely upset, I hug him to me really tight. That makes him feel safe and secure. These things work for me, but not always for his parents.

I do hope that Mitchell is able to come and stay with you for part of the summer. Not only does his parents and siblings need a break, he needs a break from them. Asperger's children need "peace and quiet," as Brandon says. He is in his glory when he comes here without his brother. He loves the one-on-one time and I'm sure Mitchell will too.

Write to me anytime. My e-mail addy is red@suite101.com Hang in there. Mitchell will make it. Some of the most famous people in the world have or had Asperger's. Bill Gates has it and it is suspected that Einstein and Thomas Jefferson had it as well.

-- posted by Red



Top 27.   Jun 14, 2003 10:26 AM

» Rosee - Re: My grandson too

In response to message posted by Red:

Thanks so much for all that information Mary and I am printing all this off to share with my son and daughter in law. They will do anything to help Mitchell and I will for sure now bring Mitchell down here with me for awhile. Thanks also for the invite to email you. I like how you make everything sound understandable for me. I also have done the what I call the "hard hug" when Mitchell is having a bad time...works for me too. smile

-- posted by Rosee



Top 28.   Jun 14, 2003 2:41 PM

» Red - Re: Re: My grandson too

In response to message posted by Rosee:


Rosee,

That is a perfect name. "Hard hug," describes it to a tee. I'm glad that your son and daughter in law will do anything to help Mitchell. They sound like loving parents. It is hard to cope with kids with Asperger's sometimes. We have to have a lot of patience and try to see the world through their eyes.

If I have helped in any way, that makes me feel wonderful. My goal in writing this article was to make other people aware of the signs of Asperger's. There's a lot of kids out there, and adults too, that have never been diagnosed. People think they are tempermental or spoiled, which is not at all true. The chemical imbalance doesn't allow them to control their emotions. One little thing can make their lives unbearable.

Does Mitchell have trouble with certain weaves of clothing? Brandon doesn't have so much trouble with that, but some kids with Asperger's have to be very careful of the clothes they wear. Rought material, or rough weave can make them react negatively to their surroundings and their peers.

Take care, Rosee. I hope that all of this information helps Mitchell. If you have any questions, post here or drop me an e-mail. My e-mail is at the top of this page.

-- posted by Red



Top 29.   Nov 10, 2005 5:41 AM

» venge - Aspergers grandson

Thanks so much for printing this story, I have twin sons that have been diagnosed one with high functioning autism and the other we are seeing a specialist next Tuesday and in his file it says possible Aspergers, and from all the info i have read on line I would agree, only difference is my son's are 16 years old and just diagnosed one last year, and have not officially diagnosed the other, they are # s 4 and 5 of my children and I am having to learn a whole new way of talking and acting around both of them, advocating at there schools, as they go to separate schools, cause they harass each other too much.
There are some awesomecoursess offered here, in Surrey B.C. witch I will be taking to educate myself more, keep on writing gives me hope, I am not as crazy as I thoughttryingn to get threw to these children, that just look at meweirdd and carry on with what they were doingloll
take care.
In parenting special kids

-- posted by venge



Top 30.   Nov 13, 2005 8:42 PM

» Red - Re: Aspergers grandson

In response to Aspergers grandson posted by venge:

Venge,

The shame of it all is that Asperger Syndrome wasn't recognized in North America until the 90's. I was discovered by Hans Asperger in 1939. No one in North America took it seriously. I wish you much luck with your sons.

I guess we were lucky to have Brandon diagnosed at 6, but if he had been diagnosed sooner, he could have had professional help that we cannot afford for him now. He is 10 and making a lot of progress.

Thanks for dropping by. I'd like to know what the diagnosis for your second son is.

-- posted by Red



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