Dwarfism

» QuartzNH - Do you have Dwarfism? or know someone who has dwarfism?

I'm curious to find out how many people on Suite101 have dwarfism, or other consitions simallar to Dwarfism. I have dwarfism. I'm 19 years old. I'm 3'8 and my form of dwarfism is Spondyloepiphyseal Dysplasia Congentia. SEDC for short. If you would like to find out more about dwarfism, or just talk, please feel free to E-mail me At:
dwidget22@aol.com

Erica

-- posted by QuartzNH

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» GaRu1 - I did not respond

to this thread, because I had nothing to say. But somewhere in my mind it must have recorded.
because the news was on the radio tonight and I was not listening to it, but I was vaguely aware that they were talking about an abortion case (Australia) 30 weeks? 35? I was not really listening. It could well have been a murder charge, (I really only listen to what my mind tunes itself into) but Suddenly I heard the word "Dwarfism" and I suspect reading the message from the last post gave my intellect a jolt. . . and I tuned in. . . It seems that Dwarfism is a valid reason for an abortion!
Well I can tell all you folks out there that If I were a dwarf (and somebody has to be) I would get right up and kick someone....

Wasn't Toulouse Le Trec a Dwarf?
he was something else!. . A great artist, that much I recall, But one of them (great artists) was a dwarf.
I am not going to go to the effort of testing my memory for accuracy. I know Le Trec was a great man, Dwarf or not.

I wonder if "artistic genius" would ever be a valid reason for abortion?

P.S. please do not post a message telling me I was wrong and Toulouse Le Trec was a Hunch back, or a Cripple, and not a Dwarf. I know WHO he was.
What, is irrelevant.

-- posted by GaRu1

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» sebbi - dwarfism

correct me if I am mistaken, but doesnt dwarfism usually coicide with heart problems and other chronic illness besides just being short?

-- posted by sebbi

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» QuartzNH - Problems other than short statured

Yes, when someone has dwarfism, there are usually psychical problems. It depends on the type of dwarfism, and what's related. My type of dwarfism is a little rare compared to your average Achondroplasia. I have what you call, Spondyloepiphyseal Dysplaisia Congentia. A big word for a small person. Some of the conditions related to my dwarfism, is Cleft Palate, problems with the spine, hearing loss (due to cleft palate) Detached Retina should be checked for every year, and other difficulties. If you would like to learn more about Dwarfism I encourage you to check out LPAonline.org LPA is Little People of America.

-- posted by QuartzNH

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» syringa - Hi

I just had to reply, because the description you give here rings so many bells with this guy I work with. I am working in Germany at the moment, and this guy is definitely the smarest and wittiest person on our team imho. He looks about the same size as you say, but he is mostly confined to a wheelchair, as his legs aren't very strong. His joints are also a slightly odd shape, most noticeable on his hands, as they are visible in the normal course of work. But the thing that probably presents the greatest difficulty for him, certainly for work purposes, is the cleft palate. German seems to be a particularly tough language to articulate with this condition. At first I felt sorry for him, in meetings and such, as he had such trouble getting across what he wanted to say, but now I know him better, I just can't stop laughing at his jokes for long enough for any pity to be left! He is one VERY cool dude! He also has a scar from a cleft lip op, and I was wondering if these other problems are par for the course for your condition, or whether he may have some other form of dwarfism? And as for these conditions being a handicap, if you are anything like as tough, smart and positive as Michael, you have avery bright future ahead of you!
All the best,
Syringa

-- posted by syringa

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» QuartzNH - Hello

I wanted to thank you for the positive responses that were posted here. It is very encouraging to me and others with and without disabilities. I just wanted to say thanks!!

Erica
*dwidgetnh@aol.com*

-- posted by QuartzNH

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» joey17 - achondroplasia??

if anyone has achondroplasia and wouldn't mind helping me understand it i would really appricate it! i was just wondering what a typical day is like? and what are the main difficuties that come with achondroplasia?
thanks

-- posted by joey17

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» IM1B4U - little body big heart

In response to message posted by joey17:
Hi Erica. Welcome to suite101 and feel free to join in any of the discussions going on here. I've put a hotlink here in case Joey or others want to check out the LPA site:
http://lpaonline.org/
I read about Colleen Fraser, a leading advocate for little people, being killed on September 11, that dwarf throwing is very risky and NOT funny (knew it already) and reminded myself of the clinical detail and challenges, behind SEDc. (There is a helluva lot of medical stuff)

Can you tell us more about yourself? That adds the human to the technical or general stuff. In the meantime, a virtual hug is on its way from Australia to you.

Jeff

-- posted by IM1B4U

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