Web Resources for Bone Diseases

The Paget Foundation Web site provides information on Paget's disease, primary hyperparathyroidism, fibrous dysplasia, osteopetrosis (not the common disease osteoporosis) and the skeletal complications of cancer. The Foundation dedicates itself to providing useful information to patients, health professionals, and researchers. Visit the site at Paget Foundation

The National Association for the Relief of Paget's disease, a British-based non-profit organization, offers support and information about treatment to people suffering from the disease, sponsors research and new treatments for the disease, and raises awareness of the disease among the public and healthcare professionals. Visit the organization's Web site at: NARP

Paget's Disease of Bone New England Registry, a joint project of Harvard Medical School and Massachusetts General Hospital, is a listing of persons with this disease who live in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island and Vermont. The registry is intend to do the following: to address the issue of prevalence of Paget's disease in New England; to identify geographic or family clusters of the disease; to foster research in the clinical and basic sciences; and to promote education and treatment for all persons with Paget's disease of bone. Visit the site at: Paget's Disease of Bone New England Registry

Fibrous Dysplasia Foundation, Inc. (FDF) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), and related diseases.

The National Osteoporosis Foundation works to prevent osteoporosis, to improve the lives of those with the disease, to promote life-long bone health, and to find a cure for bone diseases. The Foundation offers programs of awareness, education and training, advocacy and research. Visit its Web site at: Osteoporosis

The National Institutes of Health Osteoporosis and Related Bone Diseases National Resource Center provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. The National Resource Center is dedicated to increasing the awareness, knowledge and understanding of physicians, health professionals, patients, underserved and at-risk populations (such as Hispanic and Asian women, adolescents, and men) and the general public about the prevention, early detection and treatment of osteoporosis and related bone diseases.

The Osteogenesis Imperfecta Foundation is dedicated to supporting anyone needing information about the disease with free medically-verified responses to your individual questions.

The International Myeloma Foundation helps everyone battling multiple myeloma; including: patients, families, friends, caregivers and the medical and scientific communities.

The Multiple Myeloma Research Foundation (MMRF) was founded in 1998 by twin sisters Karen Andrews and Kathy Giusti following Kathy's diagnosis with multiple myeloma. Today, the MMRF is the world's number one private financier of myeloma specific research. Visit MMRF