Post this Blog to facebook Add this Blog to del.icio.us! Digg this Blog furl this Blog Add this Blog to Reddit Add this Blog to Technorati Add this Blog to Newsvine Add this Blog to Windows Live Add this Blog to Yahoo Add this Blog to StumbleUpon Add this Blog to BlinkLists Add this Blog to Spurl Add this Blog to Google Add this Blog to Ask Add this Blog to Squidoo

Apr 9, 2009

Low-Vision Students Can Do More, Faster, Outside of Special Education

For low-vision students, cultivating their own relationships with classroom teachers and organizations that provide reading resources is what drives academic success.

Reading is the most difficult and time-consuming school task, yet is also how we discover and explore interests, develop our identity, and connect with the world. So it’s vital for students to know how to accomplish any reading task, regardless of deadline.

From long experience, I can tell you that when you’re legally blind (i.e. too much vision for braille, but still in need of help), literacy isn’t acquired, it’s built: you read using an internal triage system of cultivated resources that include: audio- and large-print books; e-texts, screen readers, magnification devices, personal readers, and other strategies that develop through awareness of one’s skills and needs.

Such a system could take one years to develop, as it did me, or could be outlined for a student in an hour or two.

Unfortunately special education doesn’t work this way. It shepherds rather than liberates. It’s hard to imagine a special education teacher saying, “Let’s take a morning and get you everything you need so you can get back to being a student.” Such independence might unloop that student from the cat’s cradle of coercion and compliance known as the I.E.P.

Fortunately, there is nothing special education provides that low vision students and parents can’t get on their own, usually for free, always more quickly and efficiently.

And it’s this getting, this surveying and connecting, that far beyond leveling the playing field, enables students to storm the heights: to develop a system that facilitates any reading task and fosters an identity-building spirit of exploration, confidence, and independence. Resource-conscious students get what they need immediately, are open to reading and learning opportunities beyond the I.E.P., and can easily increase academic performance while making the day-to-day management of classroom participation more efficient for teachers.

I remember the futility of my special education—peeking under a blindfold to distinguish braille dots. Braille and typing classes addressed none of my needs, but at my I.E.P meeting, the teachers told me quitting would mean no more books on tape. Five years of special education eroded my self-esteem, consumed precious time, diminished my enthusiasm for learning, and delayed for years the full development of my literacy.

The school’s justification (not without merit) was staying in a program would insure access to services and materials. The harm was not learning that I could access taped books, the most crucial component of my education, on my own.

At 17, almost by accident, I learned how to join Recording for the Blind & Dyslexic. I went on to earn a Master’s degree, read thousands of books in a variety of formats, and devoted my first book, numerous articles, and an upcoming e-book to expanding low-vision literacy.

Despite my experience, I’m not against special education and know many adults (though none with low vision) who would never have become educated without it.

In the end, it’s not about me, or about debating the efficacy of special education, but simply asking, “What does my child need to succeed in school?”

If parents knew just how accessible the essential resources are, their child’s success, with or without special education, is all but guaranteed.




Comments
Apr 9, 2009 3:58 PM
Guest :
Excellent article Andrew! So true, it's always about asking the right questions, and the right questions come from confidence and curiosity I believe.

Annette
Apr 10, 2009 6:32 AM
Guest :
I love this article. I am interested in the "essential resources" for my 2 girls with albinism. Where do I find them?
Apr 10, 2009 11:23 PM
Guest :
I like your upbeat attitude about independence in the world of low-vision. I also the needs of every student will be different and sometimes the environment change can make all the difference for children with albinism who come from minority ethnic backgrounds. There is a lot of ignorance spread amongst peers and circumstance that are not disarmed by teachers. No matter what the education choice is a parent must become involved in their child's learning.
Many parents look for a professional recommendation for making these choice hence forth a need for an I.E.P. Instead of debating for or against a system, I think making the components which work instrumental in reducing limitations and sharing them with other parents is a more viable option.
I am an adult living with albinism and only right now becoming more involved with effective appositive technology training to reduce the strain of reading, sorting and applying print material. This disadvantage has deteriorated my lust for reading and slowed me down in the work place. I agree that it make take years to develop an individual coping mechanism to compensate, but we can reduce the disadvantages for the next generation by sharing insight!
Theory based recommendations are warped as technology changes and someone needs to be in charged of staying up to date and participating in educating the parents so that they are able to make effective choices for their children. Some parents have managed this through special education and the IEP process... but what about the people who don't know about any of this? This boils down to people helping people through networking and that's what we are doing right now, but it's not reaching far and wide enough and some children are becoming adults who were left behind.
Apr 11, 2009 2:45 PM
Guest :
Please let me know where all these free services, resources and equipment are available! I'm very excited to hear this! I am aware of the library for the blind but aside from that, other resources are elusive.

I have been fighting all school year to get appropriate services & equipment through the school because braille instructions, writers/notetakers, CCTVs and other assorted technology is so prohibitively expensive there is no way we can procure it on our own. The Commission for the Blind only provides what the school requests. The school will only request what the Commission will recommend. Being both are state entities under a budget crunch it's easy to see how this arrangement works very well...for them.

We, the parents, are being completely excluded from the discussion and decision making regarding our low vision child. We want our child to be able to read, not just to listen. We want our child to be able to walk safely down the street as a teen/adult without having to hold someone's hand. I agree we need to look beyond what the system offers and advocate for our child but I don't agree that the system should be allowed to remain in it's stagnated state.
Apr 11, 2009 2:47 PM
Guest :
Please let me know where all these free services, resources and equipment are available! I'm very excited to hear this! I am aware of the library for the blind but aside from that, other resources are elusive.

I have been fighting all school year to get appropriate services & equipment through the school because braille instructions, writers/notetakers, CCTVs and other assorted technology is so prohibitively expensive there is no way we can procure it on our own. The Commission for the Blind only provides what the school requests. The school will only request what the Commission will recommend. Being both are state entities under a budget crunch it's easy to see how this arrangement works very well...for them.

We, the parents, are being completely excluded from the discussion and decision making regarding our low vision child. We want our child to be able to read, not just to listen. We want our child to be able to walk safely down the street as a teen/adult without having to hold someone's hand. I agree we need to look beyond what the system offers and advocate for our child but I don't agree that the system should be allowed to remain in it's stagnated state.
Apr 11, 2009 3:43 PM
Guest :
Please let me know where all these free services, resources and equipment are available! I'm very excited to hear this! I am aware of the library for the blind but aside from that, other resources are elusive.

I have been fighting all school year to get appropriate services & equipment through the school because braille instructions, writers/notetakers, CCTVs and other assorted technology is so prohibitively expensive there is no way we can procure it on our own. The Commission for the Blind only provides what the school requests. The school will only request what the Commission will recommend. Being both are state entities under a budget crunch it's easy to see how this arrangement works very well...for them.

We, the parents, are being completely excluded from the discussion and decision making regarding our low vision child. We want our child to be able to read, not just to listen. We want our child to be able to walk safely down the street as a teen/adult without having to hold someone's hand. I agree we need to look beyond what the system offers and advocate for our child but I don't agree that the system should be allowed to remain in it's stagnated state.
6 Comments