Scientists located the defective CF gene in 1989. Current research has triggered exciting gene therapy advancements. Scientists funded largely by the Cystic Fibrosis Foundation (CFF) report that a cure is in sight.
CFF backs many research projects, all producing encouraging results with gene replacement and aggressive drug therapy that not only attacks CF symptoms but also its causes.
Recently, I stumbled across The Jamie Hadden Benefit Website and felt compelled to share her story.
Nineteen-year-old Jamie desperately needs a double-lung transplant. Diagnosed with CF at age 10 months, Jamie's battle rages on.
As her lung breathing capacity declines to less than 26 percent, the urgency of the necessary transplant grows.
Jamie asks us to help her overcome some obstacles before a fall 1998 target date arrives. Please take a moment to check out her site. Be sure to check out Jamie's Guestbook. The outpouring of support and compassion is very uplifting.
Go To Page: 1
| Here's the follow-up discussion on this article: | View all related messages |
For a complete listing of article comments, questions, and other discussions related to Beth Santella's Special Needs Children topic, please visit the Discussions page.