This is the story of Ted Bergeron and his work in the epilepsy community. Ted's ten year old daughter has epilepsy. It is assumed that she will have this condition for the rest of her life. Along with this she has other disabilities which accompany children with seizure disorders.
Ted and his family found that there was next to nothing in the way of information or support for those suffering from this condition. Ted started a group for parents whose children have epilepsy. The Parents Epilepsy Support Group was started as a way for parents of children with epilepsy to encourage support, share ideas, and express their concerns for thier children.
He did not just stop with the support group, he added a newsletter. This newsletter is compiled of stories, essay's, poems and information which is contributed by the members of his group.
He has a section which is dedicated to the profiles of children with epilepsy. These are stories submitted by parents which contain information on thier children and the type of epilepsy involved. This puts parents in contact with others like them who have similar problems.
He also found, as time went on, that there was a need for a teenage support group. He has a message and chat board where teenagers can come together and discuss the hardships of living with epilepsy. It is a safe place to make friends and exchange pictures.
He started what is known as UCAN, the Unique Childrens Advocacy Network. It is a place where advocates for children with disabilities can come together discuss issues, and solve problems to improve the quality of living for these youngsters.
Ted has been exceptional in establishing a reputation for integrity. His activity in the epileptic community as well as the disabled community is to be admired. He did not wait for someone else to come along. He plunged in and did it himself!
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