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Personal Stories


© Ian Chovil

In my part of the world most Internet Service Providers (ISPs) give you 5, 10 and even 20 MB of web space on their computers for a web site. That is plenty of space for a decent web site of one's experiences with schizophrenia. So very few people around the world have taken advantage of that and one can't help but wonder why. They could be anonymous and the HTML to put up a basic site is not that difficult. Maybe it is because most people with schizophrenia have very little money and can't afford the computer and ISP. I really wish more people would take it upon themselves to share their experiences because there is a considerable demand for that kind of information. It is only when people are willing to talk about schizophrenia openly that the illness will lose its stigma. I thought I'd dedicate this column to some of the sites I've come across about the first hand experience of schizophrenia.

I'd like to modestly mention my own site which has been up for two and a half years now. http://www.mgl.ca/~chovil I've had over 65,000 visitors in that time and had to find sponsors to offset the $100 a month the 100+ visitors a day are costing. I'm a big fan of Susan's http://www.guess-what.com/ and she has a long list of other people's homepages and provides space for other people's experiences at her site. http://www.guess-what.com/homepage/ Nowhere at her site could I find a page of her experiences though. An anonymous site that is well designed is http://www.users.bigpond.com/tenzil/. It's been up for a couple of years now and is listed on Yahoo's subject tree. An interesting but relatively short biography of John Nash also makes very interesting reading. http://history.math.csusb.edu/Mathematic... John Nash is a Nobel prize winning mathematician who developed schizophrenia after completing his work on noncooperative game theory which was recognized twenty years later. Bill MacPhee, who lives fairly close to me here in Ontario, used his experience of schizophrenia to create and publish a quarterly magazine called "Schizophrenia Digest." He has a web site to promote the magazine and other products he sells like a videotape of his presentation on his experience of schizophrenia.http://www.vaxxine.com/schizophrenia/. In Germany, Bodo has translated most of his experience of schizophrenia into English now. http://ourworld.compuserve.com/Homepages... Bodo e-mailed me that he was remaining anonymous because of the stigma of schizophrenia in Germany.

Often you will find personal experiences as part of a larger site, which makes them difficult to track down if you are doing a search for "the experience of schizophrenia." Brian Chiko at schizophrenia.com has provided space for people to tell their stories, and links to some at other sites. http://www.schizophrenia.com/newsletter/... Most of these of these are very interesting and they are all collected in one place. Dr. Phillip Long has several personal experiences at mentalhealth.com, at least one an expatient of his. http://www.mentalhealth.com/story/p52.ht... One personal experience that isn't very well known is at the Pine Rest Christian Health Centre site http://www.pinerest.org/todays/prtschiz.... Lonely Disease, You have scroll up two articles on that page from where the link takes you to even start reading the personal experience, which is quite well written.

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