The name Psuedo-tumor cerebri literally means "false brain tumor". This is because the symptoms mimic a brain tumor, including severe headache, nausea, swollen optic nerves, and visual disturbances. These symptoms occur because of an elevation in cerebrospinal fluids which causes pressure within the skull, around the brain. It is thought that people suffering from PTC may have a reduced ability to reabsorb excess spinal fluids. That is why a diuretic is often prescribed. Two common ones are Diamox and Lasix. These medications also have their own set of side effects that may add to the discomfort of this condition. You should discuss with your physician any side effects that may occur.
This condition mainly occurs in women between the ages of 20 and 50, although there have been cases of children and men reported. Women with PTC are often over weight, but it is debatable whether that is the cause of PTC or not. Weight loss is prescribed in most cases to eleviate the pressure. In some cases, it has helped, and in other cases the symptoms of PTC remain.
There is a possibility of mild to severe visual loss, in some cases. If it is severe, and goes untreated, blindess may result. It is very important to report any changes in vision to your doctor. Other visual distubances are commonly reported, such as photophobia and "neon" flashes. An enlarged blind spot or double vision may occur, because of the increased pressure on the optic nerves. Basically, the treatment of this condition is symptomatic. A diuretic may be prescribed, as mentioned above. It might be necessary to do lumbar punctures (spinal taps), as well. If those measures fail, a shunt may be used to balance the fluid pressure.
Onset is often sudden. A patient should get a CT scan and an MRI to rule out an actual tumor. A spinal tap may be performed at this time, to relieve the pressure immediatly, and to take measurement of the actual level of fluid pressure. Each individual has their own PTC story. Symptoms may vary, as well as recurrances. It is frustrating to find that there may not be a direct cause known for your PTC. You may be uncomfortable much of the time, with headaches. You may find that your doctor has had limited experience with this condition, and your personal and work life is suffering. If you are interested in joining the PTC online support group, please e-mail me at freedombrd@aol.com.
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