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Most People with porphyria don't suffer with problems unless they are in the middle of an attack. While some attacks are unprovoked and come on without any apparent reason, there are some things that are prone to cause attacks. The five most common are:
1. STRESS--keep to a rountine. While this may sound impossible at least you can stick to somewhat of a daily routine. Keep routine hours; up at the same time every morning, to bed around the same time each night, etc. Try to get a little exercise every day as inactivity can lead to increased pain.http://neuro-www.mgh.harvard.edu/forum_2... 2. SKIPPING meals--your body needs a constant level of carbohydrates. The popular low or no carb diets are out of the question. A high carb diet seems to help keep symptoms in check. Lay off the diet soda, too. According to the FDA, aspartame accounts for 75% of adverse reactions to food additives. http://www.invisibledisabilities.com/nut... 3. ALCOHOL--with porphyria, the liver does not process alcohol nicely which can increase your chance of liver cancer. One study to check out is http://neuro-www.mgh.harvard.edu/forum_2... 4. SULFA Drugs--which are found in prescription medications such as Celebrex and the migraine medicine Imitrex. Sulfa drugs are commonly found in antibiotics like penicillin http://www.anti-biotic.com/antibact.html and even in some diabetes medications. http://lists.essential.org/pharm-policy/... 5. CHEMICALS--bug spray, cleaning solutions, pesticides. Let someone else spray for bugs and weeds, especially if you have PCT! One good place to find out how over 3,700 chemicals can trigger porpyria attacks is at Henron Herbals. http://www.healthcalls.net/hh_porphyria.... These are only five of the hundreds of things people with porphyria should avoid if at all possible. Please email me with information on any you would like to see discussed in future articles. As always, this information is provided as a starting point to educate yourself about porphyria. Consult your doctor concerning your health care. Freebie of the Month: Check out the products Cher and Naomi Campbell use: Mario Badescu Skin Care, Inc. at http://www.mariobadescu.com. When you click on Consultations you can fill out an online form and receive FREE skin care samples. It only took about 10 days to receive them and I got 7 great samples!
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