copyright, 1999
I am reporting to you from the OCSDA Conference. It has been wonderful and quite informal. I've met many people I only knew online. Stephen Mayberg, Ph.D. discussed legislation, advocacy and public policy. He inspired us to continue advocacy for people with OCD and others with mental illness. But what can we do? What can one person do?
There remains in our society a stigma associated with mental illness. We tend to have stereotypes about people who have mental illness. They are believed by many to have character flaws or be morally weak.
Where does this misconception come from? Before I developed OCD and depression I thought the same way. This is understandable. We all have a few obsessions and compulsions. But most can control it. Most people can control their behavior so why can't people with OCD?
The difficulty is not with having the thoughts. Studies show that almost everyone has intrusive, unwanted thoughts. But people with OCD have a neurobiological problem that makes it difficult to let go of the thoughts.
Those of us who have mental illness or who have family members with mental illness can do much to diminish the stigma and myths, and make mental health care more available to more people.
1. We can talk to our lawmakers about legislation that affects the lives of the mentally ill. Changes are slow but most often occurs first on the local level. Elected officials need to be more aware of the personal experiences of those with mental illness.
2. We can pester insurance companies about inadequate coverage. Your one letter might not change your circumstance, but the letters of many can make a difference over time.
3. We can educate others. Even mental health professionals are in need of the latest information. Be assertive. Don't hesitate to bring articles and research information to your doctor, therapist and school personnel.
4. We can do everything we can to strengthen the family's ability to provide support for the person with mental illness by doing such things as provide transportation and respite and even just lending a listening ear.
5. We can educate ourselves. Find out all you can about living with OCD. Knowledge is power. That is what I did this weekend. I learned more about OCD and met many wonderful, friendly people that have the same problems I do. And many supportive, patient and loving family members who came to learn how to better support their loved ones.
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