Contact them via http://lymphedema.omno.org
and then contact your political leaders and urge them to support a comprehensive piece of LE legislation.
Health Insurer's Shall:
a. Provide policies, benefits, coverage guidelines, and provider contracting that will allow for coverage on all effective medical treatment and disease management for lymphatic and vascular disease.
b. Require providers to be certified lymphedema therapists or certified compression therapists.
c. Act in the best interest of providing a high quality of care and in the best interest of the beneficiary's health care and quality of life.
d. Act in a fair, honest and ethical manner.
Prohibited Actions of and Requirements of
Insurers
a. Insurers shall approve treatment, and purchase of supplies and equipment needed to treat and manage vascular and lymphatic diseases as ordered by the treating physician, unless there is a clear indication that treatment would be contraindicated. Denials by insurers shall include a letter to the insured, the provider, and the ordering physician, and shall state a clear detailed reason for the denial, three or more clinical studies used in determining a reason for the denial, written guarantee that the patient will not suffer physical harm or exacerbation of their condition or further complication resulting from the denial, the credentials, training, and education specific to lymphatic and vascular disease of the person denying coverage, and shall be included with the letter of denial. Denials shall not be made due to a "lack of medical necessity".
b. Insurer's shall not engage in practicing medicine without a license or practicing medicine without physically examining a patient nor attempt to engage in such, by diagnosing or recommending treatment, by disputing the diagnosis of the examining and ordering physician, denying treatment exactly as ordered but agreeing to pay for a less expensive treatment, supply, or equipment.
c. Insurer's may not obstruct a patients ability to receive effective treatment by requiring lease versus purchase of supplies and/or equipment when the treating physician's order states a lifetime need, reducing allowed reimbursement below Medicare allowable, bundling fees, or imposing benefit limits of $350,000.00 or less per year per person, in addition to hospitalization benefits, on medical services, therapy or supplies and equipment deductibles exceeding $500.00 per year per person and less than 80% coverage for any treatment as ordered by the treating physician for lymphatic and vascular disease.
d. Insurers may not engage in down coding, or bundling reimbursement for treatment, supplies, or equipment ordered and billed as treatment for vascular and lymphatic disease.
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