National Lymphedema Network Based in California, under the leadership of Executive Director, Saskia Thiadens, NLN was the first non-profit organization dedicated specifically to LE in the United States. Their mission is provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. Another goal is to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
They offer a free recorded LE message line, an informative newsletter, referrals to LE therapists, LE alert jewelry and host a bi-annual convention. The director, Saskia Thiadens, continues to be the driving foce behind lymphedema awareness internationally and is a passionate advocate for lymphedema patients. Check out this amazing organization at http://www.lymphnet.org
Lymphatic Research Foundation. LRF was founded in 1998 by Wendy Chaite, the mother of an infant diagnosed with primary lymphedema. The mission is to support and promote lymphatic research that will lead to therapeutic advance and, ultimately, a cure for lymphatic disease, lymphedema, and related disorders.
In LRF's short history, they have made great strides with massive fund-raising, national recognition and an impressive board of directors. They have garnered NIH and congressional support and Ms. Chaite remains a force to reckon with when dealing with dealing with knowledgeable lymphedema advocates. Visit LRF at http://www.lymphaticresearch.org
The Lymphedema Awareness Foundation is based in Florida, under the direction of Josephine Carey, herself an LE patient and cancer survivor. Their mission is to be a LOUD voice in the promotion of Lymphedema awareness. To establish referral networks and outreach programs for health care professionals andLymphedema patients. LAF published the first online lymphedema magazine, Lymphnotes
They are compiling lists of resources, offering high school teens the opportunity to see what a career in lymphology is all about and are making great strides towards their goals. One of their main members, Jeff Dorton, is a personal friend, who is also a lymphedema patient and the most amazing man I know. Take time to visit their website at http://www.lymphaware.org
The Circle of Hope Lymphedema Foundation was founded by Jeannie Tassis, a lymphedema patient and breast cancer survivor. The organization's mission is to promote education, awareness, research, assistance, and support to lymphedema patients and their doctors.
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