Lupus Self-Awareness - Page 2© Karyn Moran Holton
Page 2
Oct 1, 2002
The Lupus Foundation of America
The LFA is a treasure trove of information, help and support for the lupus patient, their family and friends, and the healthcare provider. Aside from the clinical information, your local LFA chapter can offer you the company and understanding of people who know exactly what you're going through, having been there themselves. Additionally, your membership helps support the research that we all so desperately need. If you've ever felt alone, and that no one understands you, I strongly urge you to contact the LFA. You can find contact information on the chapter nearest you at their website.Clinical Trials
Clinical trials may be for you if you have had little or no relief from traditional therapies and treatments. While there are no guarantees that a trial will relieve symptoms or slow the disease process, the benefits gained from the studies may be lifesavers for lupus patients in the future. Some ways to contact clinical trials:Veritas Medicine
Acurian Clinical Trials Tulsaworld Lupus Clinical TrialsCenterWatch Lupus Clinical TrialsClinicalTrials.gov
While you're out there getting the resources that you need to be a really self-aware lupus patient, don't forget to speak up as an advocate for all of us to the non-lupie world. Contact your local TV station or newspaper and ask if they're planning to do any public service announcements for National Lupus Awareness Month. Become active in the lupus community, either in the real world or online. Talk to friends and family, and answer any questions that they might have. Whatever you do, you'll be making a difference, and that's all anyone can ask. Take Care of You!
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