Lupus Awareness Month 2004!


© Karyn Moran Holton
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(First of all, let me say how wonderful it is to be back at Suite101.com! I have sorely missed my online friends, and I cannot stress enough that the support that we give each other in this unique community is a blessing and a Herculean source of strength! Much love, thanks and "props" to Margaret, Darlene, Jodi, Tamara and Tery for keeping the torch lit and for giving the support to everyone who visited here in my absence. Please take some time to visit their Topics, as much of our information overlaps and there are so many aspects of chronic illness and our quests for wellness. I love that there is so much for us to learn from each other!)

Someone you know has lupus.

Yep. Guaranteed. You may not know it. Heck, they may not know it. That's where the danger lies. That's why awareness is so important, and why we should be doing everything in our power (including shouting from the rooftops) to let people know what lupus is, what it looks like, and what it does to a life.

Lupus affects anywhere from 1.5 to 2.5 million people in the US. We don't have hard numbers because not only is it difficult to diagnose people when you don't have a definitive testing method, additionally, no one has bothered to take a head count recently.

Lupus affects mostly women, but men are not immune. It affects mostly people of Asian, Hispanic or African descent, but Caucasians are not immune. It affects mostly people between the ages of 15 and 45, but children are not immune. Basically, if you have an immune system, you're vulnerable. Scary, hmm?

Lupus doesn't just affect the person who has it, either. Nope. It's an equal-opportunity disease. A mom gets it, and it affects her children: "No, honey. Mommy can't take you to the park today. Sit down and watch TV." A husband gets it, and it affects his wife: "Sorry love, but I got laid off for 'excessive absenteeism'." A daughter gets it, and it devastates her parents: "Please, my baby needs a new kidney. Won't you help?"

We don't have telethons. We don't have an "A-List" celebrity spokesperson. We don't have high-profile fundraisers. We don't have Congressional hearings. Not only don't we have a cure, we haven't even had a new drug to treat lupus in 40 years. That's 4-0, people. We've got a dozen drugs to treat erectile dysfunction, but nothing for lupus. Doesn't it make you want to scream?

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Here's the follow-up discussion on this article: View all related messages

11.   Nov 10, 2004 6:25 PM
In response to Re: Re: Re: Re: Welcome back Karyn! posted by scottishgirl:

Hello Honey , just stopping in to say HI! Busy and yes I am ...


-- posted by micklady


10.   Nov 6, 2004 7:35 PM
In response to Welcome back Karyn! posted by tamara_peters:

I wanted to add my welcome wishes, Karyn.

It is nice to see you back aga ...


-- posted by mkfleury


9.   Nov 1, 2004 6:22 PM
In response to Re: Re: Re: Welcome back Karyn! posted by micklady:

))))Margaret((((

There just aren't enough cyber-hugs for you, my ...


-- posted by scottishgirl


8.   Oct 16, 2004 3:58 PM
In response to Re: Re: Welcome back Karyn! posted by LilBitz:

OMG I am so GLAD to see you are back my friend. I will try to visit when ...


-- posted by micklady


7.   Oct 6, 2004 3:59 PM
In response to Re: Welcome back Karyn! posted by scottishgirl:

Karyn, so glad to see you back. I look forward to getting to know you bet ...

-- posted by Roostergrl





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