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(First of all, let me say how wonderful it is to be back at Suite101.com! I have sorely missed my online friends, and I cannot stress enough that the support that we give each other in this unique community is a blessing and a Herculean source of strength! Much love, thanks and "props" to Margaret, Darlene, Jodi, Tamara and Tery for keeping the torch lit and for giving the support to everyone who visited here in my absence. Please take some time to visit their Topics, as much of our information overlaps and there are so many aspects of chronic illness and our quests for wellness. I love that there is so much for us to learn from each other!)
Someone you know has lupus. Yep. Guaranteed. You may not know it. Heck, they may not know it. That's where the danger lies. That's why awareness is so important, and why we should be doing everything in our power (including shouting from the rooftops) to let people know what lupus is, what it looks like, and what it does to a life. Lupus affects anywhere from 1.5 to 2.5 million people in the US. We don't have hard numbers because not only is it difficult to diagnose people when you don't have a definitive testing method, additionally, no one has bothered to take a head count recently. Lupus affects mostly women, but men are not immune. It affects mostly people of Asian, Hispanic or African descent, but Caucasians are not immune. It affects mostly people between the ages of 15 and 45, but children are not immune. Basically, if you have an immune system, you're vulnerable. Scary, hmm? Lupus doesn't just affect the person who has it, either. Nope. It's an equal-opportunity disease. A mom gets it, and it affects her children: "No, honey. Mommy can't take you to the park today. Sit down and watch TV." A husband gets it, and it affects his wife: "Sorry love, but I got laid off for 'excessive absenteeism'." A daughter gets it, and it devastates her parents: "Please, my baby needs a new kidney. Won't you help?" We don't have telethons. We don't have an "A-List" celebrity spokesperson. We don't have high-profile fundraisers. We don't have Congressional hearings. Not only don't we have a cure, we haven't even had a new drug to treat lupus in 40 years. That's 4-0, people. We've got a dozen drugs to treat erectile dysfunction, but nothing for lupus. Doesn't it make you want to scream? Go To Page: 1 2
The copyright of the article Lupus Awareness Month 2004! in Lupus is owned by . Permission to republish Lupus Awareness Month 2004! in print or online must be granted by the author in writing.
For a complete listing of article comments, questions, and other discussions related to Karyn Moran Holton's Lupus topic, please visit the Discussions page. |
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