This diet was originally developed in the 1920’s and widely used through the 1940’s until new anti-epileptic drugs became available. It has been shown to be useful in most types of seizures, including infantile spasms. One article stated that it is most effective on myoclonic seizures. Traditionally the diet has been used in children one to six years, but can be used in infants. It can be used with a Gtube as well.
It is essentially a high fat diet. The diet switches the primary fuel used by the body from carbohydrates (breads and sugars) to fats. The level of carbs in the diet is very low. There is a high ratio of fats to carbos with low calorie total and high fluid intake. The ratio is generally 4 grams of fat to 1 gram of protein and carbohydrates. Cream or butter is often used to elevate the fat level. An oil called MCT or medium chain triglycerol (this seems to be most often used in the UK). The Keto diet mimics the effect of fasting on the body. It puts the body into ketosis. It is not known how the diet works, just that it does work.
It is difficult to do because the amounts and types of food must be precise. All food must be premeasured and preweighed. Any deviation from the diet can result in seizures. One article stated that if the diet is not precise, anticonvulsant effects can occur within hours.
It has more benign side effects than medications, but still could be toxic and must be monitored by a neurologist and a dietician. You must find a neuro who is knowledgeable about the diet. The dietician must also have good training and experience. The neurologist should decide on the type of diet and the ratio of fats to proteins and carbohydrates, not the dietician. Stanford University Medical Center at Packard Children’s Hospital provides a list of ketogenic care providers in each state, as well as some international programs at
