Critical Thinking; Research


© Cynthia Webber (Jausten)

I seriously doubt if any of us who are living with fibromyalgia really enjoy having a chronic condition. While it is true that some people like to whine and complain about their aches and pains, it seems to me that most of us with fibromyalgia eventually learn to accept our chronic condition.

What does continue to amaze me is the number of people who will spend enormous amounts of money, time, and energy searching for the magic cure. With the media beginning to take an interest in fibromyalgia, it isn't surprising that people will flock to try the latest treatment that is being presented as a cure. However, it boggles my mind that people are willing to spend thousands of dollars for treatments that haven't been tested in a double blind experiment. Testimonials mean little if nothing, and since I have a background in scientific research, I look for scientific facts before I consider trying a new treatment.

I did see a naturopath several months ago, and the change in my diet did help me at first, but being given suppliments to try at a great cost to myself, and with no scientific background as to why they would help left me feeling that this approach was a hit or miss approach to fibromyalgia. Instead of wasting my money, I'd rather have given it to a naturopath to do actual scientific research, but it seems that those who approach fibromyalgia from a totally alternative method still haven't done sound research.

From multi-level marketing of vitamins and suppliments, magnets, and now surgery, there is little if any scientific research on these treatments. With all the money that people involved in multi-level marketing seem to make, it makes sense to me to actually do double blind experiments to show that these products really do make a difference for those of us with fibromyalgia. Magnets are another concern, and I've yet to see a scientific experiment for their effectiveness. I've read testimonials, but again, they mean little without a firm background in research.

The recent surgery of a decompression operation on either the base of the brain or the neck spine is being used for people with Chiari I Malformation and Cervical Spinal Stenosis. Dr. Robert Bennett has stated on his website, "It is not for fibromyalgia by itself. If you happen to have fibromyalgia and one of these other two diagnoses you may be a candidate for surgery. It costs about $30,000. You should only consider this surgery if a specially trained physician can demonstrate that you have abnormal neurological findings on physical examination and that these findings can be correlated with certain abnormalities on MRI of the base of the skull and/or neck."

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Here's the follow-up discussion on this article: View all related messages

5.   Aug 25, 2000 12:22 AM
I've just been diagnosed with stenosis and searched it on the net. I knew there was something more than diabetic peripheral neuropathy going on. For years, each leg felt as if they had turned to concr ...

-- posted by Angie_L


4.   Apr 11, 2000 8:59 AM
Terrific article and very timely. I suppose most everyone wuth FMS either watched the "20-20" newscast or knew someone who did. My phone was ringing off the hook with family members and friends tell ...

-- posted by CarleyB


3.   Apr 5, 2000 1:41 PM
Good article. I have suffered with FM for many years and couldn't begin to count how many well wishing family members and friends come up with try this and try that because it helped so and so. Whil ...

-- posted by leas


2.   Apr 2, 2000 6:41 PM
When you are so affected by a condition as fibromyalgia, it must be tempting sometimes to grasp at a "cure" based on testimonials, or a hasty sketch of a rationale. Holding out for reproducible resul ...

-- posted by Dan_Ellsworth


1.   Apr 1, 2000 5:16 PM
I, like you, am amazed that more of the alternate therapies haven't been researched. How much does it add to the "sale" -ability of a product when the manufacturer/distributor can say, "X was found t ...

-- posted by AmberW_2





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