Fibromyalgia & Those Stinging Comments Made by Others


© Cynthia Webber (Jausten)

What's wrong with you? Could you pronounce that word again? Oh, I had fibromyalgia, but I "cured" myself with this product. So, what's the big deal about fibromyalgia? Everyone has aches and pain. Boy, do I have pain! My back and neck are always hurting. It's no big deal.

So, what? Everyone gets tired. Try going to bed earlier. You'd feel much better if you'd just exercise and eat the right foods. You're depressed? Try this herb. It "cured" me. You'd feel better if you'd quit taking all those medications. I have a friend who had fibromyalgia and she/he uses this product. Sure, it's expensive, but it's worth it.

Forget about it, and it will go away. You want to know what your problem is? You have childhood issues that you haven't resolved. You need to see a counsellor. You just need to pray. God will heal you. I'll pray for you.

You have too much stress in your life. Try relaxing. Maybe you need a vacation. Just keep busy and you'll feel better about yourself. Fibro Fog? That's just old age. Just be thankful for what you have.

If you didn't spend so much time sitting in front of the computer, you'd feel much better. Try Tai Chi. Try karate. Try massage. Try acupuncture. Try meditation. Try this product. Go swimming. Walk every day. Quit smoking. Quit drinking coffee and soft drinks, quit eating chocolate. Quit eating meat.

Just tell your family and kids to do all the housework. Get a housekeeper. Try reading this book. You don't need disability. You look fine to me. You have a handicap parking permit? What for? You're not handicapped! Think about all the people who are worse off than you. That will make you feel better. You spend too much time dwelling on yourself. Get out and help someone else.

How many of these statements have those of us with fibromyalgia heard? Maybe not all of them, and maybe some of us have been told other things. These words hurt. They sting, and they do not validate us for having a condition which has no known cause and no known cure. Remissions can occur, and sometimes these are spontaneous or sometimes it is the combination of medications and things that we are doing in our lives which make a difference. But if someone tells me that they've been "cured", I very assertively tell them that they either didn't have a proper diagnosis of fibromyalgia in the first place, or they are in a remission. There is nothing wrong with having a remission. People with Cancer have remissions, and there is no known cause for Cancer. People with diabetes require insulin, or oral medication, or diet changes, but there is no known cause for diabetes.

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Here's the follow-up discussion on this article: View all related messages

59.   Jul 7, 1999 6:59 PM
I'm very new to this whole idea of talking online. My server (or carrier) is Integrity and it doesn't allow chat rooms unless you request having them opened to you and I requested Fibromyalgia sites. ...

-- posted by grandmama


58.   Jun 30, 1999 11:52 PM
Hello, everyone! It's been a while since I've been able to visit Suite101, so I didn't see the "responses" I had received until today.
Let me see if I can address all of them...
The meeting with my ...

-- posted by rainyday


57.   Jun 30, 1999 6:25 PM
I don't mind this comment anymore. I just say, "I thank God everyday that I don't look like I feel." And for me, it's true. ...

-- posted by fumisme


56.   Jun 21, 1999 6:47 AM
Wow, I haven't been on the net for some time and I don't remember this site. It really feels good to know that someone understands everything about it. I remember someone telling me "Gee, I am sorry ...

-- posted by GreenThumb1


55.   Jun 20, 1999 11:08 PM
I am relatively new to this wonderful site and have been working my way thru Cynthia's insightful articles. Today, I had to read this article again. Despite trying to inform some family members on FM ...

-- posted by Angie_L





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