Uniqueness of YOU with Seizures: Gaining YOUR Wisdom

(This is a continuation of Part I & Part II but this allows YOU to create your own wisdom, through your own experiences through careful reflection of your life with seizures.)

My future I would say didn't turn out to be a bleak and distorted picture. I would have never believed that I would be the President and Founder of a burgeoning organization trying to build supporters and doing volunteer recruitment! Being unconscious doesn't worry me, as I've "gone through the routine" so many times and I'm still alive with few injuries.

My concern lies in others forcing me to fight unnecessary wars, battle insurance, struggles with finding a reputable doctor and outside forces remind me about what I'd just soon forget about. Strangers typically won't do something silly due to a medical alert tag I had specially ordered stating: "Epilepsy. Prevent injury. Do not put anything in mouth. Usual seizure duration 30 seconds." Many silly folks don't search for a medical tag. Gear your tag to your own needs. Educating after these traumatic events empowers me as well.

It is possible to live a prosperous life even those "ropes attached that can hinder you". Innovation and constant adapting is involved, but taking advantage of every resource that makes you capable is the biggest part.

Years of searching for invisible answers, seeing some of the most prominent epileptologists and neurologists, made me realize I truly was an odd case. This realization gave me a desire to help others through my gained insights and whatever knowledge I accumulated through the years.

Now I work with hurt parents who have been discriminated children who have ignorant teachers working in schools with no knowledge of what a seizure is. Every child with seizures should eagerly want to return to school, find true friends, and not know betrayal. A child should smile and laugh-not be laughed at!

Rather respond to degrading remarks due to no self-esteem, I want children to hold their heads up high with pride. Of course the more The Epilepsy Connection prospers the more public awareness will exist fostering understanding. Teachers won't automatically think about a confused child daydreaming but rather seek help. Classmates will be as blind to the disorder as my friend who used a cane to guide her way. Targets are for archers and the bull's-eye only applies there, not to human beings.

I am not close to normal in terms of seizure control but perhaps I will be someday. I am young, I will eventually help support medical research and new pills, and therapies can be discovered for us all. I don't drive any type of vehicle unless better medicines and adjunct therapies are discovered to preserve the life of others and myself. One car accident ramming me into a schoolyard fence was enough realization that my simple partial seizures were too unpredictable. (I was not injured, but more importantly, it was not recess!)

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