Crohn's Disease Research (Mycobacterium Avium Subspecies Paratub


© Susan Johnson

This is personal research done by a good friend of mine and I felt it worth sharing here. Of course with his permission. Next month will be more on this subject.

Crohn's Disease Research (Mycobacterium Avium Subspecies Paratuberculosis trigger/cause of Crohn's Disease)

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Written By:

Michael D. Parent

    My name is Michael, I'm 22 years old, and I'm from Enfield Connecticut (USA). I was diagnosed with Crohn's Disease on May 1st of 2000.

     I had been to numerous doctors throughout my life, with complaints of horrendous symptoms: only to be told it was all in my head.  It usually felt as if I was being stabbed constantly around the lower right section of my abdomen. I had seen 16 doctors in total; ranging from General Practitioners, GI specialists, and Endocrinologists.

     I believe I had the disease for well over 10 years (Since age 12 or earlier). In the 10 years I went searching for answers I was misdiagnosed with everything from Anorexia, Manic Depression, ADHD, Severe Depression, and just random social anxiety.

     This year I had actually begun losing a lot of weight. Every week that passed between Christmas 1999 - May of 2000- I noticed about 5-10lbs being lost. I was 205lbs in December and shrinked down to a meager 125lbs in 4 months. I remember waking up one afternoon to go to work, and seeing myself in the mirror as I passed it to get in the shower. I realized that the person I saw in the mirror wasn't recognizable. It was at this point I became scared. I began researching online, calling doctors, and searching for answers.

    Eventually I was no longer capable of walking. I became so weak that I would go into shock If I even attempted to get out of bed. I decided that if the doctors wouldn't allow me to come to them, then I would force them to see me, by being carried into the ER.

    At the ER they ran general tests, (Blood pressure, checked eyes, ears, nose, mouth, and took a urine sample) and found .... "get this!" *Nothing wrong*. I asked if an Upper GI could be done or perhaps some general blood testing for anemia, because it was suggested that Crohn's Disease may be the cause by a close friend. They "shrugged" and said they didn't have time, or someone available to run the tests. Can you imagine the nerve of someone telling me in the Emergency Room that they didn't have a person available to run an Upper GI or general blood test? I became infuriated, and more upset. As I was leaving the hospital via wheel chair I asked the nurse if she could get me a large trash bag. She then immediately asked "why do you need such a large bag" I then responded saying "I have to have something large enough to carry all my symptoms, and suffering out through this door" She then gave me a disapproving look, and I got even more bitter.

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Here's the follow-up discussion on this article: View all related messages

2.   Sep 29, 2001 4:40 PM
In response to message posted by pFalken:

I am Michael's fiancée. I'll have you know I was there at the hospital with him when he ...

-- posted by svtscorpio


1.   Feb 16, 2001 3:39 PM
My favorite quote: She then immediately asked "why do you need such a large bag" I then responded saying "I have to have something large enough to carry all my symptoms, and suffering out through this ...

-- posted by pFalken





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