Crohn's Disease the personal side...... cont.


© Susan Johnson

I have had CD for about twelve years now and every day is one that I pray I will have a good day. There is a point of time where you ask if you are having a good day or if you are used to having bad ones. I will say that I have had the treatment, I was DX in 87' weighing 84 pounds, told I had anorexia and left to be stuffed food by the nurses on a daily basis. I was transferred to Stanford where they realized that I did not want to lose my hair on purpose or get sick on everything that entered my body, and testing began. I was told I had CD and placed on prednisone and TPN for two months. I was released from the hospital three months later, a little plumper (about 60 pounds plumper), but home. It was difficult for me, I was only 17. I was hospitalized yearly for two months on Bowel rest and on TPN for seven years in a row. ...I always would drool over the food commercials when I felt a little better, but still had a month of no food... At that age I struggled with the effects of the prednisone and would pull myself off to lose the moon face and the puffiness once I got home......this is NOT a wise thing to do. I look back and can not even believe I have come so far. I had my first surgery a year ago and still struggle to keep off the prednisone. I have never been symptom free..I am used to being able to read an entire book a week by just keeping it in the rest room, but I will continue to live day to day. I have a lot to be grateful for, I have two arms and two legs and yes, I am not able to eat all that I want, but I will continue to be here and fight until there is a cure. A sense of humor has saved me and I will say that talking to others out there that fight and do not let CD run their life is an inspiration for me. Yes, I have days where I am angry at the world and am depressed, that is to be expected, but I will not let it overcome me. I am employed full time and I go to school full time after work. I will find a way to accept my life for what it is and continue with a smile. Even if it is running to the rest room. If I do not have this attitude then I do not know how I could

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