  |
|
|
|
Part Three of What you hate about Crohn's Disease. The third part of the articles of comments of what you hate about Crohn's.
Knowing that at anytime I can become inflicted with pain and cramps and having to spend next hour in bathroom. I don't really hate Crohn's Disease. Though I've had numerous surgeries and an ileostomy over the last 16 years (I was diagnosed when I was 12) and the disease has indeed affected my life. I have not let it control it. I work in a cancer hospital and everyday I see people who I'm sure would trade places with me any day of the week. Being the sickly person. Feeling like it is something disgusting to have wrong with you. Feeling like a freak. Never knowing when you're going to have to go to the bathroom. It's like all of a sudden you have to go and then get out of the way. Constant pain and everyone telling me that they know someone who has Crohn's and they ate rice or they ate cabbage or whatever. I'm tired of people telling me if I would just do what their neighbor did, I'd be fine. The pain and losing my independence. I don't want to become a burden to my family and I'm afraid that my child and grandchildren might inherit the mess. Not able to go shopping or out to eat as I must stay close to the bathroom. This disease has robbed me of my life. Literally I've worked all my life and now can't hold down a job. I just hate everything about Crohn's and how the doctors don't have a clue. Everyday brings its own set of troubles. It's like a vicious cycle. One day it may be intestinal pain and another day its the kidneys, then the candid in the throat, then all the bone, muscle pain. It's all the related diseases that go along with it. That it controls my life when I feel the best about something and make plans and they get interfered with. The way it rules my life!!! It's difficult going out to dinner, or long journeys. Also the side effects of the drugs due to being on prednisone for a number of years, I now have osteoporosis. Its unpredictability The fact that I have had to quit school and my job. Also that even though I had an operation the pain is not as bad but everything else is much worse As of lately the bleeding and that darn stupid pain in your right side. Go To Page: 1 2 |
|
|
|
