Things we hate about Crohn's Disease part two.

Part two of things we hate about Crohn's Disease. These are more comments sent to me when asked the question "What do you hate about Crohn's Disease?"

The uncertainty of illness and the fact that it has led to my developing other illness as a result I am now disabled.

Diarrhea has become so random/frequent. I am trapped in my house (for last 10+ years) no family left and most of friends are out having fun, no time to visit. I never visit them so they tend to stop coming to my house.

NAG tubes are the pits.

Pain and uncertainty of life to come.

Trying to explain to people why you are sick, going to the rest room a lot, taking meds that screw you up. No energy during flare-ups, feeling like you have the flu but throwing up doesn't make you feel better.

I hate never knowing when my insides are going to blow!! Changing plans. Canceling outings. Never knowing when I will have a flare-up, all the bleeding and meds.

My children get shafted, while I need to take care of myself. When I've been on the john for the seventh time that day.

Not knowing what causes it or how I got it. The fact that people think you should go back to normal after surgery and think you are lazy.

Medication.

Feeling dirty, tired, joint pains, not being able to go where you would like to go.

The pain the tiredness.

Everything.

Not knowing what procedure is best, the drugs don't work, doctors looking at you like you are simple, loss of energy, HMO's, drugs that do nothing but make you swell or sick to your stomach waiting for weeks for test results that keep you in a stress overload.

For me it just seems to attacks out of the blue.

The pain, not knowing when I will gee a flare-up, prednisone.

Since my surgery I've felt great (9 months) before this -- feeling crappy all of the time and always wonder when the next flare-up was going to take place, prednisone.

Bloating

The thing I hate the most is on the bad days its hard to explain to my three-year-old daughter why I can't play with her and it's hard to explain to her why mommy is sick.

I think it is very embarrassing. I was diagnosed when I was 19 and spent my 20th birthday under a surgical knife. I hated that I had probably had it since I was 16 and the doctors said I was so anemic because of female problems. I became used to being sick and thought it was perfectly normal. I also have problems at work. I am a Police Officer and I never

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