An open letter about Fibrmyalgia Fog

I have slowly pieced my life back together I am living a new more fulfilling life. I am basicly happy and pain free, however I flare on the best days I can be so fatigued I feel as if I can't move and on other days I have pain flares. I won't ever work again and I still struggle with my monster everday... but so do amputee's. You can slowly build a new memory system.

It was horrible when I first started then I realized something. Memory coping techniques are just like a cane or wheelchair. They are there to help you regain your life not smother it. Use them! If it takes a system that includes a carefully written schedule taped to the bathroom mirror, use it!

By using aides, gadgets, scooters, wheelchairs, message boards, pens, paper calendars, and computers parts of our lives can be regained. Make a new life fight for it and don't surrender. I have my writing back. My boyfriend is an incredible editor and I love him for it. But.. :) I still forget to shower all the time so when I remember it I do it right away.

Its life with fibromyalgia and fog and lets live it to our best!

Barb

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