Maureen recruited the assistance of Lethbridge, Alberta health care professionals and spent the next few months developing an advisory committee. In November 1987, the Lethbridge Society for Rare Diseases was incorporated. (LSRD)
In 1995, Reader’s Digest published an article, “When Your Doctor Doesn’t Know.” As a result 100 daily requests for information poured in to LSRD.
Maureen’s determination to give support to those suffering from rare disorders escalated when her son, Andrew, was born in 1994. Andrew was diagnosed with Imperforate Anus, a rare disease that had no connection to the one that she suffered. Maureen felt the organization needed to accommodate growing awareness of rare disorders. LSRD made an application to incorporate a more distinctive name, the “Canadian Organization For Rare Disorders. (CORD)
CORD executives are excited by the enthusiastic response from Canadians. CORD, led by Maureen, is “confident that they will be able to further enhance the quality of life of all Canadians suffering from, or affected by, a rare disorder.
There is no doubt that Maureen has made a great contribution to Canadian society. Living with a rare disorder is always difficult. The sufferer feels isolated and lonely. Support from other individuals and groups who suffer from the same rare disorder is imperative to the well-being of all concerned.
If you know someone who suffers from a rare or “orphan” disorder, contact CORD. Being part of this organization could mean the difference between living and living life to the fullest.
Contact Information:
Canadian Organization For Rare Disorders P.O. Box 814 Coaldale, Alberta Canada TIM 1M7
Phone: (403) 345-4544 Fax: (403) 345-3948 Toll Free: 1-877-302-7273 E-Mail: office@cord.ca
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